Table 1.
Baseline demographic details of all participants recruited and the 108 participants with complete data to visit 4
| Total participants recruited | Participants with complete data to visit 4 | Participants with incomplete data to visit 4 | |
|---|---|---|---|
| N = 150 | N = 108 | N = 42 | |
| Gender, n (%) | |||
| Men | 77 (51.3) | 53 (49.1) | 24 (57) |
| Women | 73 (48.7) | 55 (50.9) | 18 (43) |
| Mean (sd) age at study entry in years | 16.2 (1.3) | 16.0 (1.3) | 16.5 (1.2) |
| Median (IQR) disease duration in years | 6.7 (5.3) | 7.5 (5.8) | 5.1 (5.4) |
| Mean (sd) age at diagnosis in years (range 1–16 years) | 9.5 (3.8) | 8.5 (3.8) | 10.8 (3.0) |
| Outcome at visit 4, n (%) | |||
| Transferred to adult services | 100 (66.7) | 88 (81.5) | 12 (28) |
| Paediatric services | 26 (17.3) | 19 (17.6) | 7 (17) |
| Outcome unknown | 24 (16.0) | 1 (0.9) | 23 (55) |