Table 1.
Characteristics | 1 Year follow-up | 2 Year follow-up |
---|---|---|
Hughes Disability Score 2 , n/d (%) | ||
Healthy | 9/15 (60%) | 5/13 (38%) |
Minor symptoms but capable of running | 3/15 (20%) | 2/13 (15%) |
Able to walk 5 m across an open space with support | 2/15 (13%) | 4/13 (31%) |
Confined to bed or chair bound | 1/15 (7%) | 1/13 (8%) |
HAQ-II Score12, median (IQR) | 0 (0–0.08) | 0.09 (0–0.55) |
Use of wheelchair, n/d (%) | 1/15 (7%) | 1/13 (7%) |
Pain score in last week, median (IQR) from 0 none to 100 maximum pain | 5 (0–30) | 40 (0–60) |
General wellbeing score, median (IQR) from 0 “I feel well” to 100 “I feel very bad” | 4 (0–20) | 21 (0–50) |
Mental health, n/d (%) in the last month | ||
Frequently enjoying things | 14/15 (93%) | 12/13 (92%) |
Frequently feel calm | 11/15 (73%) | 11/13 (85%) |
Frequently feel nervous | 2/15 (13%) | 9/13 (69%) |
Frequently feel depressed | 3/15 (20%) | 8/13 (62%) |
Frequently feel nothing is going well | 3/15 (20%) | 5/13 (38%) |
aClinical Health Assessment Questionnaire 2 (CLIN-HAQ2) is a composite score between 0 (minimal loss of function) and 3 (completely disabled)13