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. Author manuscript; available in PMC: 2019 Jul 1.
Published in final edited form as: Congenit Heart Dis. 2018 Apr 6;13(4):554–562. doi: 10.1111/chd.12605

TABLE 2.

Family financial burdens and mental health needs in the past 12 months, by congenital heart disease status, NS-CSHCN, United States, 2009–2010

Congenital heart disease
Crude PR
(95% CI)
Adjustedc PR
(95% CI)
Yes N = 1956
(weighted %, 95% CI)
No N = 34 622
(weighted %, 95% CI)
Out-of-pocket payments for all health-related needs of the childa 1.4b (1.2, 1.6) 1.4b (1.2, 1.6)
 <$250 39.6 (35.7, 43.6) 44.3 (43.3, 45.3)
 $251–$500 18.1 (15.2, 21.4) 21.6 (20.9, 22.4)
 $501–$1000 12.0 (9.7, 14.6) 11.9 (11.4, 12.5)
 >$1000 30.4 (26.9, 34.2) 22.2 (21.4, 22.9)

Financial problems caused by child’s condition 1.7 (1.5, 1.9) 1.7 (1.6, 1.9)
 Yes 35.0 (31.4, 38.9) 20.8 (20.0, 21.6)
 No 65.0 (61.1, 68.6) 79.2 (78.4, 80.1)

Family members stopped working/cut hours to care for child 1.8 (1.6, 2.0) 1.7 (1.6, 1.9)
 Yes 42.8 (38.8, 46.8) 23.9 (23.0, 24.8)
 No 57.3 (53.2, 61.2) 76.1 (75.2, 77.0)

Hours/week providing or coordinating care for child 1.9b (1.6, 2.2) 1.8b (1.5, 2.1)
 <1 29.4 (26.1, 32.9) 39.6 (38.7, 40.6)
 1–4 34.6 (30.9, 38.4) 37.6 (36.6, 38.5)
 5–10 13.0 (10.5, 15.9) 10.3 (9.7, 11.0)
 ≥11 hours/week 23.1 (19.5, 27.1) 12.5 (11.8, 13.2)

Family members needed mental health services due to child’s condition 1.3 (1.0, 1.6) 1.3 (1.0, 1.6)
 Yes 14.9 (12.0, 18.3) 11.6 (10.9, 12.2)
 No 85.2 (81.7, 88.1) 88.4 (87.8, 89.1)

Abbreviations: PR, prevalence ratio; CI, confidence interval; FPL, federal poverty level.

a

Copayments, dental or vision care, medications, special foods, adaptive clothing, durable equipment, home modifications, and any kind of therapy within the past 12 months.

b

Using dichotomized variable (>$1000 vs ≤$1000 and ≥11 hours/week vs <11 hours/week).

c

Adjusted for age, gender, race/ethnicity, insurance type, medical home, person completing survey, family structure, family education level.