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. 2018 Aug 10;7(8):e171. doi: 10.2196/resprot.9087

Table 2.

Outcomes of effectiveness.

Outcomes and tools Description Answered by
Quality of Life

Quality of life in Alzheimer´s disease [39]
  • 13-item tool

  • Addresses mood, cognitive, and functional ability, activities of daily life and quality of relationships with family and friends

  • Uses a 4-point Likert scale ranging from “poor” (1p) to “excellent” (4p) with a maximum score of 52

Both the spouses or partners individually
Caregiver-Related Quality of Life

Carer Quality of life [40]
  • 7-item tool

  • Addresses 5 negative and 2 positive dimensions of providing informal care

  • Uses 3-point Likert scale from “a lot” (0p) to “no” (2p) for the negative dimensions and reversed scale for positive dimensions. The higher the score, the better the care situation

Partner or spouse caregiver
Self-efficacy

General Self-efficacy Scale [43]
  • 10-item tool

  • Assess coping skills and adaptation to situations

  • Has a four choice response ranging from “not at all true” (1p) to “exactly true” (4p); Scores are summarized to a total score, and a higher score indicates a higher sense of self-efficacy

Both the spouses or partners individually
Interconnectedness


The Inclusion of Other in Self Scale [42]
  • A single item pictorial measure of closeness

  • Assess people’s sense of being interconnected to each other

Both the spouses or partners individually
Mutuality


Mutuality Scale [41]
  • 15-item Mutuality Scale

  • Includes four dimensions—love and affection, shared values, reciprocity and shared pleasurable activities

  • Rated on a 4-point Likert scale between 0 “not at all” to 4 “a great deal”

Both the spouses or partners individually
Health and social care service use

Service use questionnaire
  • The service use questionnaire was adapted from current service use questionnaires held by the investigators, it will be refined by consultation with the study service user group

  • Covers key health and social care services

  • Assesses the range of services used as well as the frequency of use

  • The measure will be administered by the researcher at the baseline and end of follow-up assessments

Both the spouses or partners individually
Health status


EQ-5D-5L (EuroQol health measure with 5 levels of severity for 5 dimensions) [44]
  • Has a 5-dimensional structure (mobility, self-care, usual activities, pain or discomfort, and anxiety or depression)

  • Each dimension has 5 levels: no problems, slight problems, moderate problems, severe problems, and extreme problems

  • Allows estimation of quality-adjusted life years

Both the spouses or partners individually

DEMQOL (Measurement of health-related quality of life for people with dementia) [45]
  • A condition-specific measure of health-related quality of life for people with dementia

  • Can be completed with the person with dementia or a main caregiver

  • The measures cover 5 domains: daily activities and looking after yourself, health and wellbeing, cognitive functioning, social relationships, and self-concept

  • Preference weights are available to allow estimation of quality-adjusted life years

Partner or spouse with dementia