Table 1.

Focus group discussion guide

Understanding the impact of CLE on patients’ lives

1.Briefly tell me/write down all the ways that CLE affects you. aProbe: Kindly tell me how CLE affects your work life, daily activities, social life, personal relationships, leisure activities, or any other ways possible. Also tell me the impact of CLE on photosensitivity, alopecia, and your mental health.

2.Which other areas can you think of that has been affected by CLE?

Unmet needs with regard to CLE treatment and care

3.Thinking about your treatment for CLE, what types of issues are important to you? Why is that? aProbe: What attributes would you like to see in a future therapy for CLE that isn’t currently available in your current regimen?

CLE, cutaneous lupus erythematosus

^aProbes were used as necessary and appropriate.