Table 3.
our predictors of interest | relevant findings from our umbrella systematic review | our conclusion on the link |
---|---|---|
Primary-caregiving role and caring for PWD at later stage of disease |
• Caregivers who had a relatively heavy patient care load experienced a greater burden from their caregiving (Chiao et al., 2015). • Impairment in physical activities of daily living predicted burden in Black caregivers, while impairment in instrumental activities of daily living predicted burden in White caregivers (Connell and Gibson, 1997). • Caregivers of persons with greater independence in ADLs used more solution-focused coping, whereas caregivers of persons with less independence in ADLs employed emotional support/acceptance-based coping (Roche et al., 2016). • Disabilities in activities of daily living increased burden and depressive symptoms in caregivers (van der Lee et al., 2014). |
Physical-care demands |
Caring for PWD with behavioral problems | • Frequency of behavioral disturbances was the primary predictor of negative emotions and caregiver burden (Caceres et al., 2016). • Behavioral disturbances in patients with dementia were associated with greater burden in family caregivers (Chiao et al., 2015). • Pooled correlations indicated moderate associations between BPSD (behavioral and psychological symptoms of dementia) and caregiver burden, caregiver distress, and caregiver depression (Gilhooly et al., 2016). • Behavioral problems in persons with dementia predicted dysfunctional coping in caregivers (Roche et al., 2016). • Behavioral problems increased burden and depressive symptoms in caregivers (van der Lee et al., 2014). |
Behavioral problems |
Lower education | • Caregivers with low educational level were associated with greater burden (Chiao et al., 2015). • Higher caregiver education predicted solution-focused coping, while lower caregiver education predicted emotional support/acceptance-based coping (Roche et al., 2016). • Caregivers’ competence was among the most consistent determinant of caregiver burden, depression, and mental health. Caregivers’ feeling of competence or higher self-efficacy was beneficial with regards to burden and mental health (Gilhooly et al., 2016). • Lower caregiving competence increased burden and depressive symptoms in caregivers (van der Lee et al., 2014). |
Lower caregiving competency |
Spousal relationship | • Spousal caregivers experience grief and loss in the context of the present as well as in the future (Cabote et al., 2015). • Spousal caregivers experience feelings of isolation and loss of self-esteem due to the emotional distance with the person with dementia (Caceres et al., 2016). • The theme of “loss of partner” was central to spousal caregivers, and around this central experience spouses described various processes: acknowledging change, being in crisis, adapting and adjusting, accepting, and moving forward (Pozzebon et al., 2016). • Dementia changes how couples connect with each other, with some spouses gradually feeling the loss of closeness and shared identity (Wadham et al., 2016). |
Loss and grief |
PWD, persons with dementia.