Table 2.
Author | Year | Country | Setting | Patients | Carers | Type of patient | Data collection | Data analysis reported |
Aasen et al 107 | 2012 | Norway | 5 H, East, West | 11 | ESKD | Interviews | Critical discourse | |
Aasen et al 246 | 2012 | Norway | 5 H, East, West | 7 | ESKD | Interviews | Critical discourse | |
Aasen287 | 2012 | Norway | 5 H, East, West | 11 | 17 | ESKD | Interviews | Critical discourse |
Al-Arabi104 | 2006 | USA | 1 C, Southwest | 80 | ESKD | Interviews | Naturalistic inquiry, thematic | |
Allen et al 173 | 2011 | Canada | 1 H, urban | 7 | ESKD | Ethnographic observations, interviews | Participatory action, thematic | |
Allen et al 64 | 2015 | Canada | 2 H | 6 | 11 | ESKD | Ethnographic observations, interviews | Thematic |
Anderson et al 77 | 2008 | Australia | 9 H, 17 C | 241 | ESKD | Interviews | Thematic | |
Anderson et al 53 | 2012 | Australia | 9 H, 17 C | 241 | ESKD | Interviews | Thematic | |
Arslan and Ege200 | 2009 | Turkey | 1 H, Kenya | 10 | ESKD | Interviews | Content | |
Ashby et al 38 | 2005 | Australia | 2 H, Melbourne | 16 | ESKD | Interviews | Grounded theory | |
Avril-Sephula et al 118 | 2014 | UK | 1 H, North | 8 | ESKD | Interviews | Thematic | |
Axelsson et al 187 | 2012 | Sweden | 2 H, 2 C | 8 | ESKD | Interviews | Phenomenological, hermeneutical | |
Axelsson et al 136 | 2012 | Sweden | 2 H, 2 C | 8 | ESKD | Interviews | Phenomenological, hermeneutical | |
Axelsson et al 134 | 2015 | Sweden | 2 H, 1 C, urban | 14 | ESKD | Interviews | Content | |
Bailey et al 235 | 2015 | UK | Bristol | 32 | Transplanted | Interviews | Constant comparison | |
Bailey et al 39 | 2016 | UK | Bristol | 13 | Transplanted | Interviews | Constant comparison | |
Baillie and Lankshear156 | 2015 | UK | Wales | 16 | 9 | ESKD | Interviews | Thematic |
Baillie and Lankshear157 | 2015 | UK | Wales | 16 | 9 | ESKD | Interviews | Thematic |
Barbosa and Valadares145 | 2009 | Brazil | 1 C, Rio de Janeiro | 10 | ESKD | Interviews | Grounded theory | |
Bath et al 252 | 2003 | UK | South | 10 | ESKD | Interviews | Phenomenological | |
Beanlands et al 210 | 2005 | Canada | Ontario | 37 | ESKD | Interviews | Grounded theory | |
Bennett et al 197 | 2013 | Australia | 4 C | 9 | 2 | ESKD | Interviews facilitated by images | Thematic |
Blogg and Hyde69 | 2008 | Australia | Urban | 5 | ESKD | Interviews | Ethnographic | |
Boaz and Morgan175 | 2014 | UK | Rural, urban | 25 | Transplanted | Interviews | Constant comparison | |
Bourbonnais and Tousignant105 | 2012 | Canada | 1 H | 25 | ESKD | Interviews | Content | |
Bridger238 | 2009 | UK | GP, South | 23 | CKD | Interviews, drawings, journals | Grounded theory | |
Bristowe et al 126 | 2015 | UK | 2 C, London | 20 | ESKD | Interviews | Thematic | |
de Brito-Ashurst et al 121 | 2011 | UK | London | 20 | CKD | Focus groups, vignettes and diaries | Thematic | |
Browne et al 226 | 2016 | USA | South | 40 | ESKD | Focus groups | Content | |
Buldukoglu et al 186 | 2005 | Turkey | Antalya | 40 | Transplanted | Open-ended questions | Constant comparison | |
Burnette and Kickett78 | 2009 | Australia | 1 C, Perth | 6 | ESKD | Interviews | Thematic | |
Cadena et al 154 | 2015 | Mexico | Coyotepec, Mexico | 5 | ESKD | Interviews | Interpretative phenomenological | |
Calvey and Mee146 | 2011 | Ireland | NA | 7 | ESKD | Interviews | Colaizzi’s method | |
Calvinl 251 | 2004 | USA | 3 C, Texas | 12 | ESKD | Interviews | Constant comparison | |
Calvin et al 292 | 2014 | USA | Texas | 18 | ESKD | Interviews | Interpretative, Glaserian | |
Campos and Turato234 | 2003 | Brazil | 1 H, Sao Paulo | 7 | ESKD | Interviews | Thematic | |
Campos and Turato87 | 2010 | Brazil | 1 H, Sao Paulo | 7 | ESKD | Interviews | Thematic | |
Campos et al 88 | 2015 | Brazil | H, C, Paraná | 23 | ESKD | Interviews | Content | |
Cases et al 279 | 2011 | UK | NA | 6 | ESKD | Interviews | Phenomenological | |
Cervantes et al 52 | 2017 | USA | 1 H, Colorado | 20 | ESKD | Interviews | Thematic | |
Chatrung et al 188 | 2015 | USA | California | 8 | CKD | Interviews | Thematic | |
Chenitz et al 86 | 2014 | USA | 4 C, Pennsylvania | 30 | ESKD | Interviews | Grounded theory | |
Chiaranai40 | 2016 | Thailand | 1 H | 26 | ESKD | Interviews | Thematic | |
Cho and Shin41 | 2016 | South Korea | 1 H, South | 5 | ESKD | Interviews | Colaizzi’s method | |
Chong et al 164 | 2016 | South Korea | 1 H, South | 8 | ESKD | Interviews | Content | |
Clarkson and Robinson106 | 2010 | USA | Oklahoma | 10 | ESKD | Interviews | Thematic | |
Costa et al 198 | 2014 | Brazil | 3 H, Paraíba | 26 | ESKD | Interviews | Lexical | |
Costantini et al 92 | 2008 | Canada | Ontario | 14 | CKD | Interviews | Content | |
Cox et al 148 | 2016 | USA | 6 C, New Mexico | 50 | ESKD | Interviews | Interpretive description | |
Cramm et al 219 | 2015 | The Netherlands | 1 H, Rotterdam | 15 | 12 | ESKD | Interviews | Factor analysis, Q methodology |
Cristóvao et al 113 | 2013 | Portugal | 1 C, Lisbon | 20 | ESKD | Interviews | Thematic | |
Crowley-Matoka et al 83 | 2005 | Mexico | 2 prog, Guadalajara | 50 | Transplanted | Interviews | NA | |
Curtin et al 265 | 2001 | USA | Diverse | 18 | ESKD | Interviews | Content | |
Curtin et al 264 | 2002 | USA | 18 | ESKD | Interviews | Content | ||
da Silva et al 103 | 2016 | Brazil | 1 C, Northeast | 30 | ESKD | Interviews | Content and thematic | |
da Silva et al 338 | 2011 | Brazil | 1 H, Rio Grande do Sul | 9 | ESKD | Interviews | Qualitative | |
Darrell et al 281 | 2016 | USA | 1 H | 12 | ESKD | Interviews | Giorgi’s method | |
Davison et al 231 | 2006 | Canada | Alberta | 24 | ESKD | Interviews | Constant comparison, iterative | |
Davison et al 291 | 2006 | Canada | 1 H | 19 | ESKD | Interviews | inductive | |
de Brito et al 89 | 2015 | Brazil | 1 H, Minas Gerais | 50 | Transplanted | Interviews | Collective subject technique | |
de Rosenroll et al 277 | 2013 | Canada | 1 H | 10 | ESKD | Interviews | Constant comparison | |
Dekkers et al 42 | 2005 | The Netherlands | 2 C | 7 | ESKD | Interviews | Phenomenological | |
DePasquale et al 221 | 2013 | USA | NP, 1 C | 68 | 62 | CKD | Group interviews | Mixed method |
dos Reis et al 155 | 2008 | Brazil | 1 H, Sao Paulo | 8 | ESKD | Interviews | Content | |
dos Santos et al 162 | 2011 | Brazil | Rio de Janeiro | 8 | ESKD | Interviews | Grounded theory | |
dos Santos et al 259 | 2015 | Brazil | 3 NP, Rio Grande do Sul | 20 | Transplanted | Interviews | Critical incident | |
Ekelund et al 43 | 2010 | Sweden | 1 C, South | 39 | 21 | ESKD | Interviews | Content |
Erlang et al 203 | 2015 | Denmark | 1 H | 9 | CKD (predialysis) | Interviews | Systematic text condensation | |
Eslami et al 214 | 2016 | Iran | 4 C, Isfahan | 20 | ESKD | Interviews | Thematic | |
Finnegan-John et al 90 | 2013 | UK | 1 trust, London | 118 | 12 | CKD/ESKD | Interviews and focus groups | Thematic |
Flores et al 165 | 2004 | Brazil | 1 H, Rio Grande do Sul | 9 | ESKD | Interviews | Content | |
Fraguas et al 37 | 2008 | Brazil | 2 H, Minas Gerais | 18 | ESKD | Interviews | Content | |
Ghadami et al 239 | 2012 | Iran | 1 charity, Isfahan | 15 | Transplanted | Interviews | Content | |
Giles et al 159 | 2003 | Canada | 1 H, urban | 4 | ESKD | Interviews | Thematic | |
Giles et al 160 | 2005 | Canada | 4 | ESKD | Interviews | Phenomenological | ||
Goff et al 288 | 2015 | USA | New Mexico | 13 | 9 | ESKD | Interviews | Thematic |
Goldane et al 176 | 2011 | USA | 1 C | 39 | Transplanted | Focus groups and interviews | Iterative analysis | |
Gordon et al 180 | 2007 | USA | 20 | Transplanted | Diary entries | Thematic | ||
Gordon et al 84 | 2009 | USA | 2 H, Illinois, New York | 82 | Transplanted | Interviews | Thematic | |
Gricio et al 114 | 2009 | Brazil | 1 H, Sao Paulo | 20 | ESKD | Interviews | Thematic | |
Gullick et al 339 | 2016 | Australia | 1 H, Sydney | 11 | 5 | ESKD | Interviews | Hermeneutic interpretation |
Hagren et al 282 | 2001 | Sweden | 1 H | 15 | ESKD | Interviews | Content | |
Hagren et al 115 | 2005 | Sweden | 3 H | 41 | ESKD | Interviews | Content | |
Hain et al 189 | 2011 | USA | 6 C, Southeast | 56 | ESKD | Interviews | Story inquiry method | |
Hanson et al 70 | 2016 | Australia | 1 C, West | 20 | ESKD | Interviews | Thematic | |
Harrington et al 283 | 2016 | UK | 8 H | 24 | Transplanted | Interviews | Thematic | |
Harwood et al 270 | 2014 | Canada | 1 H | 13 | ESKD | Interviews | Content | |
Harwood et al 248 | 2005 | UK | 1 H, London | 11 | CKD/ESKD | Interviews | Content | |
Haspeslagh et al 240 | 2013 | Belgium | 1 H, Leuven | 31 | Transplanted | Interviews and questionnaires | Thematic | |
Heiwe et al 137 | 2003 | Sweden | 1 H, Karolinska | 16 | ESKD | Interviews | Contextual | |
Heiwe et al 140 | 2004 | Sweden | 1 H, Karolinska | 16 | CKD/ESKD | Interviews | Contextual | |
Herbias et al 116 | 2016 | Chile | 1 C, Santiago | 12 | ESKD | Interviews | Streubert’s method | |
Herlin et al 284 | 2010 | Sweden | 3 C | 9 | ESKD | Interviews | Giorgi’s method | |
Hollingdale et al 227 | 2008 | UK | 20 | CKD/ESKD | Focus groups | Framework approach | ||
Hong et al 120 | 2017 | Singapore | 1 H | 14 | ESKD | Interviews | Thematic | |
Horigan et al 138 | 2013 | USA | 1 C, Mid-Atlantic | 14 | ESKD | Interviews | Content | |
Hutchison et al 290 | 2017 | Canada | 1 clinic, urban | 9 | 16 | CKD/ESKD | Interviews | Interpretive description |
Iles-Smith et al 232 | 2005 | UK | 1 C, Manchester | 10 | CKD (predialysis) | Interviews | Thematic | |
Johnston et al 128 | 2012 | UK | 1 trust, London | 9 | ESKD | Interviews | Thematic | |
Kaba et al 340 | 2007 | Greece | 2 H, Athens | 23 | ESKD | Interviews | Qualitative | |
Kahn et al 35 | 2015 | USA | 2 NP, New York | 34 | CKD | Interviews | Thematic | |
Karamanidou et al 15 | 2014 | UK | 1 C, London | 7 | ESKD | Interviews | Interpretative, phenomenological | |
Kazley et al 44 | 2015 | USA | 1 C, Southeast | 20 | CKD/ESKD | Focus groups | Thematic | |
Keeping et al 73 | 2001 | Canada | East | 8 | ESKD | Interviews | Thematic | |
Kierans et al 167 | 2001 | Ireland | 5 | ESKD | Interviews, life stories | Phenomenological | ||
Kierans et al 166 | 2005 | Ireland | 5 | CKD/ESKD | Interviews | Phenomenological | ||
Kierans et al 125 | 2013 | Mexico | 1 H, Jalisco | 51 | 87 | CKD/ESKD, transplanted | Interviews, observation* | Ethnographic approach |
King et al 91 | 2002 | UK | 1 C | 22 | CKD/ESKD | Interviews | Template approach | |
Knihs et al 168 | 2013 | Brazil | 1 C, South | 20 | ESKD | Interviews | Content | |
Krespi-Boothby et al 147 | 2004 | UK | 1 H, 4 C | 16 | ESKD | Interviews | Thematic | |
Krespi-Boothby et al 151 | 2013 | UK | 1 H, 4 C | 16 | ESKD | Interviews | Template approach | |
Ladin et al 202 | 2016 | USA | 2 C, Massachusetts | 23 | ESKD | Interviews | Thematic | |
Ladin et al 269 | 2017 | USA | 2 C, Massachusetts | 31 | ESKD | Interviews | Thematic Nutbeam’s framework | |
Landreneau et al 274 | 2006 | USA | 1 C, 1 NP, South | 6 | ESKD | Interviews | Colaizzi’s method | |
Landreneau et al 278 | 2007 | USA | 2 C, South | 12 | ESKD | Interviews | Colaizzi’s method | |
Lawrence et al 169 | 2013 | UK | 1 C | 10 | ESKD | Interviews | Conceptual and categorical | |
Lederer et al 266 | 2015 | USA | 1 C | 32 | CKD/ESKD | Interviews | Thematic | |
Lee et al 223 | 2008 | Denmark | Diverse | 27 | 18 | ESKD | Focus groups | Thematic |
Lee et al 45 | 2016 | Singapore | 1 organisation | 20 | ESKD | Interviews | Thematic | |
Lenci et al 256 | 2012 | USA | 4 | ESKD | Interviews | Thematic | ||
Leung et al 181 | 2007 | Hong Kong | 1 C | 12 | Transplanted | Interviews | Content | |
Lewis et al 285 | 2015 | UK | 14 H | 40 | ESKD | Interviews | Grounded theory | |
Lin et al 190 | 2015 | Taiwan | 1 C, S, rural | 15 | ESKD | Interviews | Constant comparison | |
Lindberg et al 46 | 2008 | Sweden | 1 C, mid-country | 10 | ESKD | Interviews | Content | |
Lindberg et al 262 | 2013 | Sweden | 1 C, mid-country | 10 | ESKD | Interviews | Content | |
Lindsay et al 280 | 2014 | Australia | 1 C, Sydney | 7 | ESKD | Interviews | Thematic | |
Llewellyn et al 271 | 2014 | UK | 4 C, London | 19 | ESKD | Interviews | Thematic | |
Lo et al 129 | 2016 | Australia | 4 H, Melbourne, Sydney | 58 | CKD/ESKD | Interviews and focus groups | Thematic | |
Lopes et al 170 | 2014 | Brazil | 1 C, Santa Catarina | 12 | ESKD | Interviews | Interpretative | |
Lopez-Vargas et al 94 | 2014 | Australia | 3 C, New South Wales | 38 | CKD | Focus groups | Thematic | |
Lopez-Vargas et al 93 | 2016 | Australia | 3 C, New South Wales | 38 | CKD/ESKD | Focus groups | Thematic | |
Lovink et al 217 | 2015 | The Netherlands | 1 C | 12 | ESKD | Interviews | Content | |
Low et al 161 | 2014 | UK | 5 C, Southeast | 26 | ESKD | Interviews | Thematic | |
Machado et al 149 | 2003 | Brazil | Sao Paulo | 18 | ESKD | Interviews | Discourse | |
Marques et al 228 | 2014 | Brazil | Paraná | 10 | ESKD | Interviews | Content | |
Martin-McDonald et al 194 | 2003 | Australia | 5 C | 10 | ESKD | Interviews | Thematic | |
Martin-McDonald et al 195 | 2003 | Australia | 1 C | 10 | ESKD | Interviews | Thematic | |
Mason et al 95 | 2007 | UK | 1 C | 9 | 5 | CKD | Focus groups | Framework approach |
McCarthy et al 163 | 2010 | Australia | 1 H | 5 | ESKD | Interviews | Sequential | |
McKillop et al 267 | 2013 | UK | Clinics | 10 | CKD | Interviews | Thematic | |
Mercado-Martínez et al 49 | 2014 | Mexico | Jalisco, San Luis Potosí | 21 | Transplanted | Interviews | Thematic | |
Mercado-Martínez et al 48 | 2015 | Brazil | 1 H, South | 11 | 5 | ESKD | Interviews | Content |
Mercado-Martínez et al 47 | 2015 | Mexico | Public H and institutions, Jalisco | 37 | 50 | ESKD | Interviews | Content |
Mitchell et al 205 | 2009 | UK | 1 C | 10 | CKD/ESKD | Interviews | Content | |
Molzahn et al 294 | 2012 | Canada | Middle size city | 14 | CKD | Interviews | Thematic | |
Moran et al 204 | 2009 | Ireland | 1 H | 16 | ESKD | Interviews | Interpretive | |
Moran et al 150 | 2009 | Ireland | 1 H | 16 | ESKD | Interviews | Interpretive | |
Moran et al 133 | 2011 | Ireland | H | 16 | ESKD | Interviews | Interpretative | |
Morton et al 79 | 2010 | Australia | Diverse | 95 | ESKD | Interviews | Thematic | |
Muduma et al 96 | 2016 | UK | 2 C | 37 | Transplanted | Focus groups | Qualitative | |
Nagpal et al 218 | 2017 | USA | 1 C, New York | 36 | ESKD | Interviews | Coding | |
Namiki et al 220 | 2010 | Australia | 1 H | 4 | ESKD | Interviews | Thematic | |
Niu et al 196 | 2017 | China | 1 C, Jiangsu | 23 | ESKD | Interviews | Continuous comparison | |
Nobahar et al 67 | 2016 | Iran | 1 H, Semnan | 8 | 12 | ESKD | Interviews | Graneheim Lundman content |
Nobahar et al 68 | 2016 | Iran | 1 H, Semnan | 8 | 12 | ESKD | Interviews | Granheim and Lundman’s approach |
Noble et al 293 | 2009 | UK | 1 service, London | 30 | 17 | ESKD | Interviews | Constant comparison |
Noble et al 98 | 2010 | UK | 1 service, London | 30 | 17 | ESKD | Interviews | Constant comparison |
Noble et al 97 | 2012 | UK | 1 service | 19 | ESKD | Interviews | Constant comparison | |
Nygardh et al 289 | 2011 | Sweden | 1 C, South | 12 | CKD (predialysis) | Interviews | Content | |
Nygardh et al 236 | 2011 | Sweden | 1 C, South | 20 | CKD | Interviews | Latent content | |
Malheiro Oliveira et al 209 | 2012 | Brazil | Bahia | 19 | ESKD | Interviews | Categorical | |
Orr et al 182 | 2007 | UK | 1 C | 26 | Transplanted | Focus groups | Thematic | |
Orr et al 183 | 2007 | UK | 1 C | 26 | Transplanted | Focus groups | Thematic | |
Oyegbile et al 65 | 2016 | Nigeria | 2 H, Southwest | 15 | ESKD | Interviews | Content | |
Pelletier-Hibbert et al 286 | 2001 | Canada | East | 41 | ESKD | Focus groups | Thematic | |
Piccoli et al 224 | 2010 | Italy | 1 H | 12 | CKD/ESKD, transplanted | Focus groups | Not clear | |
Pietrovski et al 208 | 2006 | Brazil | 1 H, Paraná | 15 | ESKD | Interviews | Content | |
Pilger et al 225 | 2010 | Brazil | 1 C, Paraná | 22 | ESKD | Interviews | Thematic | |
Polaschek et al 54 | 2003 | New Zealand | 1 C | 6 | ESKD | Interviews | Thematic | |
Polaschek et al 55 | 2006 | New Zealand | 1 regional department | 20 | ESKD | Interviews | Thematic | |
Polaschek et al 56 | 2007 | New Zealand | 1 regional department | 20 | ESKD | Interviews | Thematic | |
Prieto et al 130 | 2011 | Spain | Andalusia | 22 | ESKD | Interviews | Discourse | |
Rabiei et al 141 | 2015 | Iran | Isfahan | 20 | ESKD | Interviews | Thematic | |
Ravenscroft et al 260 | 2005 | Canada | 3 C | 7 | ESKD | Interviews | Inductive | |
Reid et al 268 | 2012 | UK | 1 C, clinics | 11 | CKD/ESKD | Interviews | Thematic | |
Reta et al 131 | 2014 | Spain | 1 H, Araba | 14 | ESKD | Interviews | Content | |
Richard et al 108 | 2010 | USA | 14 | ESKD | Interviews | Cultural negotiation model framework | ||
Rifkin et al 99 | 2010 | USA | 1 C | 20 | CKD/ESKD | Interviews | Thematic | |
Rix et al 58 | 2014 | Australia | New South Wales, rural | 18 | ESKD | Interviews | Thematic | |
Rix et al 57 | 2015 | Australia | New South Wales, rural | 18 | 29 | ESKD | Interviews | Thematic |
Rodrigues et al 191 | 2011 | Brazil | 1 C, South | 8 | ESKD | Interviews | Categorical | |
Ros et al 244 | 2012 | USA | 1 H, Maryland | 19 | ESKD | Focus groups | Thematic | |
Roso et al 119 | 2013 | Brazil | 1 H, South | 15 | ESKD | Narrative interviews | Thematic | |
Russ et al 229 | 2005 | USA | 2 C, California | 43 | ESKD | Interviews | Anthropologic study | |
Russell et al 241 | 2003 | USA | 1 C, Midwest | 16 | Transplanted | Interviews | Constant comparison | |
Rygh et al 71 | 2012 | Norway | North | 11 | ESKD | Interviews | Inductive, actor’s point of view | |
Sadala et al 72 | 2012 | Brazil | 1 H | 19 | ESKD | Narrative interviews | Phenomenological, hermeneutical | |
Sahaf et al 222 | 2017 | Iran | 2 hour, Sari | 9 | ESKD | Interviews | van Manen’s thematic | |
Salvalaggio et al 82 | 2003 | Canada | 1 H, Ontario | 12 | ESKD | Interviews | Immersion/crystalisation | |
Schell et al 272 | 2012 | USA | 1 university system, 1 NP, North Carolina | 29 | 11 | CKD/ESKD | Interviews and focus groups | Thematic |
Schipper et al 184 | 2014 | The Netherlands | 5 H | 30 | Transplanted | Focus groups and interviews | Thematic | |
Schmid-Mohler et al 85 | 2014 | Switzerland | 1 H, Zurich | 12 | Transplanted | Interviews | Content | |
Schober et al 206 | 2016 | USA | 14 states | 48 | ESKD | Interviews | Thematic | |
Seah et al 50 | 2013 | Singapore | 3 H | 9 | ESKD | Interviews | Interpretative phenomenological | |
Shahgholian et al 142 | 2015 | Iran | 1 H, Isfahan | 17 | ESKD | Interviews | Colaizzi’s method | |
Shaw et al 275 | 2015 | New Zealand | Diverse | 24 | ESKD | Interviews | Phenomenological | |
Sheu et al 245 | 2012 | USA | Maryland | 27 | 23 | ESKD | Focus groups | Thematic |
Shih et al 59 | 2011 | New Zealand | 1 C, North | 7 | ESKD | Interviews | Hermeneutical and thematic | |
Shirazian et al 123 | 2016 | USA | 1 C, Northeast | 23 | CKD | Focus groups | Thematic | |
Sieverdes et al 174 | 2015 | USA | 1 C, South Carolina | 27 | Transplanted | Focus groups | Thematic | |
Smith et al 207 | 2010 | USA | 2 C | 19 | ESKD | Focus groups | Content | |
Spiers et al 177 | 2015 | UK | 1 C, London | 4 | Transplanted | Interviews | Interpretative phenomenological | |
Spiers et al 171 | 2016 | UK | 2 online groups | 10 | ESKD | Interviews | Thematic | |
Stanfill et al 178 | 2012 | USA | 1 C, mid-South | 7 | Transplanted | Focus groups | Iterative | |
Stewart et al 81 | 2012 | USA | 2 C, urban | 19 | ESKD | Interviews | Coding | |
Tanyi et al 201 | 2006 | USA | Mid-West | 16 | ESKD | Interviews | Colaizzi’s method | |
Tanyi et al 192 | 2008 | USA | 2 C, mid-West | 16 | ESKD | Interviews | Colaizzi’s method | |
Tanyi et al 193 | 2008 | USA | Mid-West | 16 | ESKD | Interviews | Colaizzi’s method | |
Tavares et al 216 | 2016 | Brazil | 1 H, Rio de Janeiro | 19 | ESKD | Interviews and groups | Content | |
Taylor et al 111 | 2016 | Australia | 2 H, Sydney | 26 | ESKD | Interviews | Thematic | |
Taylor et al 215 | 2015 | UK | 6 trusts | 15 | 11 | ESKD | Interviews | Constant comparison |
Theofilou et al 122 | 2013 | Greece | 1 H, Athens | 10 | ESKD | Interviews | Phenomenological | |
Thomé et al 247 | 2011 | Brazil | 1H, Rio Grande do Sul | 10 | ESKD | Interviews | Cultural | |
Tielen et al 179 | 2011 | The Netherlands | 1 C | 26 | Transplanted | Interviews | Q methodology | |
Tijerina et al 76 | 2006 | USA | 8 C, Texas | 26 | ESKD | Interviews | Coding | |
Tong et al 63 | 2009 | Australia | 4 H, Brisbane, Sydney, Melbourne | 63 | CKD/ESKD | Focus groups | Thematic | |
Tong et al 152 | 2013 | Italy | 4 C, Bari, Marsala, Nissoria, Taranto | 22 | 20 | ESKD | Interviews | Thematic |
Tong et al 237 | 2015 | Australia | 1 C, Adelaide | 15 | CKD/ESKD | Interviews | Thematic | |
Tonkin-Crine et al 127 | 2015 | UK | 9 C | 42 | ESKD | Interviews | Thematic | |
Torchi et al 153 | 2014 | Brazil | 1 C, Rio de Janeiro | 10 | ESKD | Interviews | Collective subject technique | |
Tovazzi et al 117 | 2012 | Italy | North | 12 | ESKD | Interviews | Phenomenological | |
Tweed et al 109 | 2005 | UK | 1 C, Leicester | 9 | ESKD | Interviews | Phenomenological | |
Urstad et al 242 | 2012 | Norway | 1 C | 15 | Transplanted | Interviews | Hermeneutic | |
Valsaraj et al 60 | 2014 | India | 1 H, South Karnataka | 10 | ESKD | Interviews | Phenomenological | |
Velez et al 100 | 2006 | Spain | 1 C | 12 | ESKD | Interviews | Thematic | |
Vestman et al 263 | 2014 | Sweden | 1 H | 9 | ESKD | Written narratives | Thematic | |
Visser et al 276 | 2009 | The Netherlands | 1 C | 14 | ESKD | Interviews | Thematic | |
Wachterman et al 172 | 2015 | USA | 1 C | 16 | ESKD | Interviews | Thematic | |
Walker et al 124 | 2012 | UK | 1 H | 9 | CKD | Interviews | Thematic | |
Walker et al 51 | 2016 | New Zealand | 3 C | 43 | 9 | ESKD | Interviews | Thematic |
Walker et al 61 | 2016 | New Zealand | 3 C | 43 | 9 | ESKD | Interviews | Thematic |
Walker et al 80 | 2017 | New Zealand | 3 C | 13 | ESKD | Interviews | Thematic | |
Walton et al 258 | 2002 | USA | 1 H, rural, Northwest | 11 | ESKD | Interviews | Grounded theory | |
Walton257 | 2007 | USA | 1 C | 21 | ESKD | Interviews | Grounded theory | |
Weil253 | 2000 | USA | 2 C, rural, Northwest | 14 | ESKD | Interviews | Thematic | |
Wells254 | 2015 | USA | 3 C, 1 NP, Texas | 17 | 17 | ESKD | Interviews | Thematic |
Wells62 | 2015 | USA | 3 C, 1 NP, Texas | 15 | 21 | ESKD | Interviews | Thematic |
White et al 139 | 2004 | USA | 1 C, Colorado | 6 | 9 | ESKD | Interviews | Thematic |
Wiederhold et al 185 | 2012 | Germany | 1 C | 10 | Transplanted | Interviews | Content | |
Wilkinson et al 75 | 2011 | UK | Luton, West London, Leicester | 48 | ESKD | Interviews | Thematic | |
Wilkinson et al 233 | 2014 | UK | 4 C | 16 | 45 | Transplanted | Interviews and focus groups | Thematic |
Wilkinson et al 74 | 2016 | UK | 4 C | 16 | 45 | ESKD | Interviews and focus groups | Thematic |
Williams et al 101 | 2009 | Australia | 2 H | 20 | CKD | Interviews | Qualitative | |
Williams et al 102 | 2008 | Australia | 2 H, Melbourne | 23 | CKD | Interviews and focus groups | Interpretative | |
Williams et al 261 | 2009 | Australia | 1 H, Melbourne | 23 | CKD | Interviews | Qualitative | |
Wilson et al 255 | 2015 | UK | 3 C | 15 | 15 | ESKD | Focus groups | Thematic |
Winterbottom et al 230 | 2012 | UK | 1 C, Northern England | 20 | CKD | Interviews | Thematic | |
Wu et al 66 | 2015 | Taiwan | 2 C, Central | 15 | ESKD | Interviews | Thematic | |
Xi et al 110 | 2011 | Canada | 1 C, Ontario | 13 | ESKD | Interviews | Thematic | |
Xi et al 158 | 2013 | Canada | 1 C, Ontario | 10 | ESKD | Interviews | Thematic | |
Yeun et al 143 | 2016 | South Korea | 1 H, Seoul | 33 | ESKD | Interviews | Q methodology | |
Yngman-Uhlin et al 135 | 2010 | Sweden | Southeast | 14 | ESKD | Interviews | Phenomenological | |
Yngman-Uhlin et al 132 | 2016 | Sweden | 1 H, Southeast | 8 | ESKD | Interviews | Content | |
Yodchai et al 249 | 2016 | Thailand | 2 H, Songkhla | 20 | ESKD | Interviews | Qualitative | |
Yodchai et al 199 | 2012 | Thailand | 1 C, South | 5 | ESKD | Interviews | Grounded theory | |
Yu et al 112 | 2014 | Singapore | NKF | 32 | ESKD | Interviews | Thematic | |
Yumang et al 144 | 2009 | Canada | 1 H, Quebec | 9 | ESKD | Interviews | Colaizzi’s method | |
Ziegert et al 213 | 2001 | Sweden | 12 | ESKD | Interviews | Pragmatic approach | ||
Ziegert et al 211 | 2006 | Sweden | Southwest | 13 | ESKD | Interviews | Content | |
Ziegert et al 212 | 2009 | Sweden | Southwest | 20 | ESKD | Interviews | Content |
*Includes healthcare staff.
C, centre, unit or clinic; CKD, chronic kidney disease; D, dialysis; ESKD, end-stage kidney disease; GP, general practice; H, hospital; HD, haemodialysis; NA, not available; NKF, National Kidney Foundation (Singapore); NP, nephrology practice; PD, peritoneal dialysis.