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Descriptive data for self-reported total functional capacity
| TFC scale | Patient cohort (n = 77) | Caregiver cohort (n = 35) |
|---|---|---|
| Total score [mean (SD)] | 7.5 (3.5) | 3.8 (3.0) |
| Disease stage based on TFC (%) | ||
| Earlier stage (TFC score 7–13) | 60 | 14 |
| Later stage (TFC score 0–6) | 40 | 86 |
Three patient respondents were missing across the TFC items and thus not included in the table
SD standard deviation, TFC total functional capacity
