Table 1.

Interview and focus group guide

Healthcare professionals interview
Do you think patients are satisfied with the level of information they are given about ILD when they receive the diagnosis of pulmonary fibrosis or interstitial lung disease?
How well would you say patients understand the disease?
What topics do you think should be included in an ILD education program included in pulmonary rehabilitation?
Do you think some topics should not be addressed?
Given the heterogeneous nature, evolution, and treatment options of ILDs, how do you think tailored educational information should be delivered to groups of patients undergoing pulmonary rehabilitation?
Do you think ILD patients should be grouped and separated from COPD patients in the setting of pulmonary rehabilitation?
ILD patient focus group
Are you satisfied with the level of information you were given about ILD when you received the diagnosis of pulmonary fibrosis or interstitial lung disease?
Did you look for information elsewhere?
Did you look on the Internet to get additional information?
How well would you say you understand the disease?
What topics do you think should be included in an ILD education program in pulmonary rehabilitation?
Do you think some topics should not be addressed?
How would you want this information to be delivered (group discussion, written material, online resources, formal education program)?
Do you think ILD patients should be grouped and separated from COPD patients in the setting of pulmonary rehabilitation?

Definition of abbreviations: COPD = chronic obstructive pulmonary disease; ILD = interstitial lung disease.