Table 3.
Results of assessments in 96 caregivers using the self-developed questionnaire.
| PART I: DISTRESS AND PROBLEMS | |
| Distress mean (SD; median) | 6.5 (2.5, 6) |
| Problems with… | n (%) |
| Child Care | 11 (11) |
| Housing situation | 10 (10) |
| Insurance/finance | 23 (24) |
| Mobility/transport | 36 (38) |
| Working/education | 24 (25) |
| Interaction with children | 10 (10) |
| Interaction with life partner | 27 (28) |
| Interaction with parents | 12 (13) |
| Depression | 12 (13) |
| Anxiety | 46 (48) |
| Nervousness | 45 (47) |
| Sadness | 52 (54) |
| Worries | 67 (70) |
| Changes in relationship | 31 (32) |
| PART II: QUALITY OF LIFE | |
| Quality of Life of caregiver* | 4.4 (1.5) |
| Global health of caregiver* | 4.7 (1.4) |
| PART III: REQUESTED SUPPORT | |
| Profession | n (%) |
| Psychologist | 14 (15) |
| Social service | 12 (13) |
| Doctor | 23 (24) |
| Outpatient care | 13 (14) |
| Physiotherapist | 14 (15) |
| Pastor | 4 (4) |
| Dietician | 10 (10) |
| Self-help group | 4 (4) |
| Family | 25 (26) |
| Palliative services | 8 (8) |
| Request for further explanation of terms | 3 (3) |
In part I, caregivers indicated their distress and problems. In part II, caregivers indicated their quality of life and health status. In part III, they indicated by which profession he/she needed support.
*
Likert scale 1–7 with 1 = extremely poor and 7 = very good.