Exhibit 2:
Survey respondents’ attitudes about commercialization, recent health experience, support for research, and values
| Percent very or fairly true, or median |
|
|---|---|
| Commercialization of biospecimens | |
| I would be comfortable with my university hospital using my leftover biological samples to generate income (question A) |
22.6% |
| It is important to be clearly notified about my biological samples being used for commercial use (question B) |
66.6 |
| Profits from commercial use should only be used to support future research (question C) |
62.1 |
| Profits should be shared with the public in the form of a charitable trust fund (question D) |
40.5 |
| Recent health experience (past year) | |
| Self or loved one in ER | 40.4% |
| Self or loved one hospitalized | 31.5 |
| Support for research | |
| Favorable view of data sharing | 74.2 |
| People have an obligation to participate in research. | 21.8 |
| Valuesa | |
| Index of privacy concernsd | 1.8 |
| Index of altruisme | 2.8 |
| Whether most people can be trusted | 39.4 |
| Index of trust in the health systemb | 10.8 |
| Index of trust in health care providersc | 2.8 |
SOURCE Authors’ analysis of data from the 2016 trust in health information sharing survey. NOTE ER is emergency room.
a
Median.
b
Range: 4 (low trust) to 16 (high trust).
c
Range: 1 (low trust) to 4 (high trust).
d
Range: 1 (low privacy concerns) to 4 (high privacy concerns).
e
Range: 1 (low altruism) to 4 (high altruism).