Table 3.

Caregiver's perception of the intervention

“Caregiving is hard, stressful, and very emotionally draining—it's like my entire life has been turned upside down—I had thought retirement would be fun, easy and enjoyable—it is not. My physical health suffers as well as my mental health… This workshop was very, very good and gave me many tools and much info to make caregiving better. I recommend it to everyone!”

“I am so grateful for the workshop, I learned lots of wonderful skills to help me get through helping Mom at the hospital.”

“It made me handle my mother better—even if only slightly, or better said—maybe it made me handle myself better.”

“The workshop has given me a new outlook concerning my husband's care—I try to see his point of view in dealing with day-to-day activities”

“I believe that even at the early stage, that “stepping into the reality” is key to all of this! I will live on in this realm!”

“Your seminar was most helpful with getting rid of reality therapy, slowing down, and just going with the flow”

“I will try to use some of the techniques I learned in the workshop. I think it has helped quite a bit.”

“I thought the workshop was great! If I would have had it earlier on, it would have been more helpful! I had already been taking care of my dad for 1 and a half years when I went to the workshop, so I felt like I was familiar with a lot of info.”

“The workshop has given me some new and different techniques in dealing with my husband. These behaviors have made it easier to deal with him. Thank you!”

“The workshop is well intentioned but seemed more gender specific and geared toward a touchy feely.”

“Really need a support group in this area for FTD caregivers. Need more information on how to deal with a loved one with FTD on a daily basis.”

“I found the workshop very helpful even though my husband has aphasic and cannot speak much anymore. It did change my attitude in trying to help and communicate with him even without language.”

“I am so glad that I attended this workshop. It was a very enlightening event for me. I have such a more positive outlook on this journey with my wonderful wife. [My wife's] grace is amazing and even though this is not the path I would have chosen, I think my love for her as grown exponentially with this new challenge.”

“Thank you for letting me participate in this project. By thinking about my feelings it helps me cope better with my situation.”