Table 3.
Subscale/item | N (n = 175) | Difficulty levela (%) (95% CI) |
---|---|---|
Part 1 – Scales 1–5: How strongly you disagree or agree with the following statements (strongly disagree/disagree/agree/strongly agree) | ||
1. Feeling understood and supported by healthcare providers | ||
I have at least one healthcare provider who … | 175 | 12.6 (8.1–18.4) |
I have at least one healthcare provider I can … | 175 | 12.6 (8.1–18.4) |
I have the healthcare providers I need … | 175 | 19.4 (13.9–26.1) |
I can rely on at least one … | 175 | 13.1 (8.5–19.1) |
2. Having sufficient information to manage my health | ||
I feel I have good information about health … | 175 | 22.9 (16.9–29.8) |
I have enough information to help me deal … | 175 | 37.7 (30.5–45.3) |
I am sure I have all the information I … | 175 | 50.9 (43.2–58.5) |
I have all the information I need to … | 175 | 44.0 (36.5–51.7) |
3. Actively managing my health | ||
I spend quite a lot of time actively managing … | 175 | 29.1 (22.5–36.5) |
I make plans for what I need to do to be … | 175 | 14.3 (9.5–20.4) |
Despite other things in my life, I make time … | 175 | 24.0 (17.9–31.2) |
I set my own goals about health and fitness | 175 | 12.0 (7.6–17.8) |
There are things that I do regularly … | 175 | 27.4 (21.0–34.7) |
4. Social support for health | ||
I can get access to several people who … | 175 | 25.7 (19.4–32.9) |
When I feel ill, the people around me really … | 175 | 45.1 (37.6–52.8) |
If I need help, I have plenty of people I … | 175 | 29.1 (22.5–36.5) |
I have at least one person … | 175 | 41.1 (33.8–48.8) |
I have strong support from … | 175 | 33.7 (26.8–41.2) |
5. Appraisal of health information | ||
I compare health information from different … | 175 | 21.7 (15.9–28.6) |
When I see new information about health, I … | 175 | 25.7 (19.4–32.9) |
I always compare health information … | 175 | 28.6 (22.0–35.9) |
I know how to find out if the health … | 175 | 32.0 (25.2–39.5) |
I ask healthcare providers about the quality … | 175 | 21.7 (15.9–28.6) |
Subscale/item | Responders (n = 175) | Difficulty levelb (%) (95% CI) |
Part 2 – Scales 6–9: How easy or difficult the following tasks are for you to do now (cannot do or always difficult/usually difficult/sometimes difficult/usually easy/always easy) | ||
6. Ability to actively engage with healthcare providers | ||
Make sure that healthcare providers understand … | 175 | 60.6 (52.9–67.9) |
Feel able to discuss your health concerns with a … | 175 | 41.1 (33.8–48.8) |
Have good discussions about your health … | 175 | 44.6 (37.1–52.3) |
Discuss things with healthcare providers … | 175 | 52.6 (44.9–60.2) |
Ask healthcare providers questions to get … | 175 | 47.4 (39.8–55.1) |
7. Navigating the healthcare system | ||
Find the right healthcare | 175 | 69.1 (61.7–75.9) |
Get to see the healthcare providers you need to | 175 | 57.7 (50.0–65.1) |
Decide which healthcare provider you need … | 175 | 52.6 (44.9–60.2) |
Make sure you find the right place to get … | 175 | 62.9 (55.2–70.0) |
Find out what healthcare services you are … | 175 | 60.6 (52.9–67.9) |
Work out what is the best care for you | 175 | 66.9 (59.4–73.8) |
8. Ability to find good health information | ||
Find information about health problems | 175 | 53.7 (46.0–61.3) |
Find health information from several … | 175 | 50.3 (42.6–57.9) |
Get information about health so you are … | 175 | 46.9 (39.3–54.5) |
Get health information in words you … | 175 | 53.1 (45.5–60.7) |
Get health information by yourself | 175 | 53.1 (45.5–60.7) |
Subscale/item | Responders (n = 175) | Difficulty levelb (%) (95% CI) |
9. Understand health information well enough to know what to do | ||
Confidently fill medical forms in the correct … | 174 | 39.7 (32.3–47.3) |
Accurately follow the instructions from … | 175 | 50.3 (42.6–57.9) |
Read and understand written health … | 175 | 48.0 (40.4–55.7) |
Read and understand all the information on … | 175 | 37.1 (30.0–44.8) |
Understand what healthcare providers are … | 175 | 32.0 (25.2–39.5) |
CI: confidence interval.
Difficulty level was calculated as the proportion responding disagree and strongly disagree as against agree or strongly agree.
Difficulty level was calculated as the proportion responding cannot do, very difficult or quite difficult as against quite easy and very easy.