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. Author manuscript; available in PMC: 2019 Sep 1.
Published in final edited form as: J Head Trauma Rehabil. 2018 Sep-Oct;33(5):342–353. doi: 10.1097/HTR.0000000000000373
Primary node Secondary node Tertiary node Quaternary node Node description
Respite Include any nonspecific reference to respite regardless of source of respite (eg, VA and community)
Not wanting respite care Include references to not needing or wanting respite care
Caregiver not wanting Include direct references to the caregiver not wanting respite services because alternative care is not optimal
Service member not wanting Include direct references to the SMV not wanting respite services due to distrust in strangers or other reasons
Barriers Include ineligibility for respite care or care provided not being in line with the needs of the SMV or caregiver
Supports Include positive references to respite care
Barriers Include nonspecific reference to barriers to healthcare services
SMV medical/ physical/mental healthcare Include broad references to SMV poor quality of care
Access to services Include nonspecific references with regard to barriers to healthcare access, including disability rating, diagnosis, and Purple Heart award
Time commitment and proximity to services Indication that distance to care facility is prohibitive and/or that the amount of time required to get to and be seen for the appointment is prohibitive
Cost References that indicate that it is too expensive to seek care
Insurance Include references to actual benefits and service connection percentages, as well as threats to losing benefits; barriers can also include burden of paperwork and difficulty navigating the system
Scheduling Include things such as being unable to get a timely appointment, being given appointment times at the last minute, as well as difficulties for noncaregivers in getting onto base to bring service member to appointments
Services provided Include any negative reference to services that the SMV receives and/or is qualified for; also include references to stigma related to SMV healthcare; references can be about barriers to appointments, treatment, resources, therapy, or access to lawyers
Compensation Include negative references about compensation (eg, lack of reimbursement for travel and interruptions in disability compensation)
Community organizations Include negative references to community organizations, support groups, sponsored respite care through community organization; outreach during transition home
Caregiver medical/ physical/mental healthcare General statements of difficulties associated with being a caregiver, including lack of understanding, stigma, and difficulty finding and sharing information
Advocacy Include instances of needing to advocate for either their own care or that of their SMV
Access to services Include difficulties accessing care due to not being married to service member (nonmarried partner or parent); no private health insurance; too expensive to seek care; treatment too far away
Cost Too expensive to seek care, not being reimbursed for travel
Insurance Not being married to service member; no private health insurance; lack of satisfaction with insurance provided
Role recognition and understanding Include references about a lack of recognition related to care provided; include threats to losing their status/benefits
Services provided Include references to services that the caregiver qualifies for or has access to; include counseling, caregiver coordinators, training, and resources
Compensation Include negative references to caregiver stipend
Family care/kids Include unmet needs for children of SMV; this includes negative experiences with family relocation due to proximity to treatment; kids not able to access base during early phases of treatment; kids needing help understanding service member’s injury; barriers to benefits for these children; lack of medical care or counseling for children
Spouse/partner combined care Include references that indicate barriers to combined care for spouse and SMV (eg, inability to schedule appointments together)
Supports Include nonspecific positive references to healthcare services
SMV medical/ physical/mental healthcare Include broad references to SMV high-quality care
Access to services Include nonspecific references with regard to positive experiences with healthcare access, including disability rating, Purple Heart award, and timely diagnosis
Time commitment and proximity to services Positive references that appointments are efficient and that treatment location is close and convenient
Cost References that healthcare is affordable and costs are reasonable
Insurance Positive references to having adequate benefits and service connection percentages
Scheduling Positive references about flexibility and ease of scheduling healthcare appointments
Services provided Include any positive reference to services that the SMV receives and/or is qualified for; references can be about appointments, treatment, resources, therapy, or access to lawyers
Compensation Include positive references to disability compensation
Community organizations Include general references to community organizations, support groups, sponsored respite care through community organizations; include positive experiences with community outreach during transition home
Operation Finally Home Positive experiences with Operation Finally Home
Coalition to Support America’s Heroes Positive experiences with Coalition to Support America’s Heroes
Operation Home Front Positive experiences with Operation Home Front
Hearts of Valor Positive experiences with Hearts of Valor
Wounded Warrior Project Positive experiences with Wounded Warrior Project
Caregiver medical/ physical/mental healthcare Include broad references to caregiver’s positive experiences with healthcare
Access to services Include references to caregiver access to benefits, including status as a caregiver within the healthcare system
Cost Include reference to affordable care
Insurance Include access to insurance for the caregiver
Role recognition and understanding Include positive statements about caregiver recognition and appreciation
Services provided Include positive references to caregiver coordinator, physical healthcare, medications, and mental healthcare; also include references to resources, education, and support provided to caregiver
Compensation Include any positive reference to caregiver stipend
Family care/kids Include positive experience for the needs for children of SMV; include positive experiences with family relocation and access to healthcare services for children
Spouse/partner combined care Include references that support combined care for spouse and SMV (eg, being able to be seen together and doctors taking the time to talk with both the SMV and caregiver); include positive references about healthcare providers inquiring about caregiver health during SMV appointment