Table 3.
Demographics and clinical characteristics of survey and interview participants
| Characteristic | Survey participants, N = 100 (%) | Interview participants, N = 15 (%) |
|---|---|---|
| Age (years) | ||
| Mean (SD) [range] | 77 (±7) [65–96] | 76 [66–88] |
| Gender | ||
| Male | 49 (49) | 7 (47) |
| Female | 50 (50) | 8 (53) |
| Prefer not to say | 1 (1) | 0 |
| Ethnicity | ||
| Caucasian/White | 71 (71) | 11 (73) |
| Black/African American | 21 (21) | 3 (20) |
| Other/Mixed/Multiethnic | 4 (4) | 1 (7) |
| Hawaiian/Pacific Islander | 3 (3) | 0 |
| Hispanic | 1 (1) | 0 |
| Living situation | ||
| Living with spouse/partner | 58 (58) | 9 (60) |
| Living alone | 26 (26) | 3 (20) |
| Living with family | 15 (15) | 3 (20) |
| Living in sheltered accommodation | 1 (1) | 0 |
| Time since symptom onset | ||
| <6 months | 7 (7) | 2 (13) |
| 6 months–1 year | 14 (14) | 4 (27) |
| 1–2 years | 38 (38) | 3 (20) |
| 3–4 years | 18 (18) | 3 (20) |
| 5–10 years | 8 (8) | 3 (20) |
| >10 years | 10 (10) | 0 |
| Unknown | 5 (5) | 0 |
| Age at diagnosis | ||
| Known | 72 (72) | 10 (67) |
| Mean age in years (SD) [range] | 75 (±7) [63–94] | 74 [66–86] |
| Unknown | 17 (17) | 2 (13) |
| Suspected—no yet confirmed | 11 (11) | 3 (20) |
| Medication usage | ||
| Currently receiving medication | 46 (46) | 7 (47) |
| Mean months on medication (SD) [range] | 25 (±30) [0–153] | 38 [3–98] |
| Not currently receiving medication | 54 (54) | 8 (53) |
| Of which, previously received medication | 3 (6) | 1 (13) |
Abbreviation: SD, standard deviation.