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. Author manuscript; available in PMC: 2018 Oct 13.
Published in final edited form as: Genet Med. 2018 Apr 12;20(11):1396–1404. doi: 10.1038/gim.2018.17

Table 1.

Characteristics of infants admitted to the NICU who later died.

Age at NICU
Admission, days
Median (Q1–Q3) Minimum, Maximum
7.0 (1.0–30.0) 0.0, 232.0

Gestational Age, weeks Gestational Age Category, weeks N (%)

37 – 41 76/170 (45)
<37 94/170 (55)
32–37 39/170 (23)
28–32 22/170 (13)
<28 33/170 (19)

Primary Admission Diagnosis N (%)

Multiple congenital anomalies 27/170 (17)
Acquired gastrointestinal disease 20/170 (12)
Perinatal depression/birth asphyxia 17/170 (10)
Congenital heart defect 21/170 (12)
Prematurity 12/170 (7)
Neurologic disorder 10/170 (6)
Metabolic disorder 8/170 (5)
Renal disorder 9/170 (5)
Pulmonary hypertension 8/170 (5)
Acquired respiratory disorder 6/170 (4)
Gastrointestinal malformation 7/170 (4)
Genetic syndrome 5/170 (3)
Infection 5/170 (3)
Congenital hematologic/oncologic disorder 5/170 (3)
Other congenital disordersa 5/170 (3)
Apparent life-threatening event or arrest at home 3/170 (2)

Total NICU days Median (Q1–Q3) Minimum, Maximum

9.0 (2.0–28.0) 0.0, 261.0

Age at Death, days Median (Q1–Q3) Minimum, Maximum

48.0 (12.8–168.0) 0.0, 1660.0

Location of Death N (%)

Home 13/170 (8)
NICU 101/170 (59)
Other unit/floor in the hospital 41/170 (24)
Otherb/Unknown 15/170 (9)
a

congenital airway/pulmonary disorder (2), congenital dermatologic disorder (2), vein of Galen malformation (1)

b

en route to the hospital or at an outside hospital