Table 1.
VOICES MaJam Coding Frame
| Node No. | Parent node | Child node | Definition/ description of terms |
|---|---|---|---|
| 1 | Person-centred | 1.1 Kindness & Compassion (Positive) 1.2 Dignity & Respect (Positive) 1.3 Kindness & Compassion (Negative) 1.4 Dignity & Respect (Negative) |
Staff attitudes (incl. Mention of professionalism) Caring Attentiveness Going extra mile Being understanding Empathy |
| 2 | Patient preference | 2.1 Positive Comments 2.2 Negative Comments |
Preferred place of care, of treatment, etc. Person centred approach to patient preferences |
| 3 | Equity of access | 3.1 Positive Comments 3.2 Negative Comments |
To services (having to come through A/E where others don’t as perceive by respondent) to palliative care team/other specialists or community services, etc. (examples include comments on weekends and out-of-hours services) |
| 4 | Safe practice/environment | 4.1 Staff skills (positive) 4.2 Staff shortages (positive) 4.3 Safe environment (positive) 4.4 Staff skills (negative) 4.5 Staff shortages (negative) 4.6 Safe environment (negative) |
Competency to manage symptoms/deliver care e.g. A/E trolleys, over-crowding, other patients. Including mentíons of general care. |
| 5 | Good Communication | 5.1 Patient 5.2 Relative 5.3 MDT |
Being informed/being able to express concerns; responsiveness of staff, being asked about concerns/needs/ Communication a two-way process Verbal & nonverbal & written communication aspects Incl. mentions of bereavement card/letter |
| 6 | Poor Communication | 6.1 Patient 6.2 Relative 6.3 MDT |
Being informed/being able to express concerns; responsiveness of staff, being asked about concerns/needs/ Communication a two-way process Verbal & nonverbal & written communication aspects |
| 7 | Shared decision making/ participation | 7.1 Positive Comments 7.2 Negative Comments |
Patient and/or relative and staff (participation for patient and/or relative) |
| 8 | Privacy | 8.1 Positive Comments 8.2 Negative Comments |
Overheard/exposure Personal space/public place |
| 9 | Symptom management | 9.1 Physical (positive) 9.2 Psychological (positive) 9.3 Social (positive) 9.4 Emotional (positive) 9.5 Spiritual (positive) 9.6 Physical (negative) 9.7 Psychological (negative) 9.8 Social (negative) 9.9 Emotional (negative) 9.10 Spiritual (negative) |
Psychological = depression Social Emotional = upset Spiritual (may be religious/humanist) |
| 10 | Physical environment | 10.1 Positive Comment 10.2 Negative Comments |
Facilities on wards/hospital (e.g. refreshments)/ parking/mortuary/ family room/single room/cleanliness/visiting times |
| 11 | Family support | 11.1 Support presence of family (positive) 11.2 After death care (positive) 11.3 Bereavement care (positive) 11.4 Support presence of family (negative) 11.5 After death care (negative) 11.6 Bereavement care (negative) |
Physical, psychological, social, emotional, spiritual Sensitive/appropriate Incl. mention of bereavement card/letter |
| 12 | Coordination of care | 12.1 Across teams (positive) 12.2 Within MDT (positive) 12.3 Across teams (negative) 12.4 Within MDT (negative) |
Chaos Calling the shots |
| 13 | Patient care needs | 13.1 Prior to death (positive) 13.2 After death (positive) 13.3 Prior to death (negative) 13.4 After death (negative) |
Basic physical care needs (comfort, positioning, intake) e.g. Laying out of the deceased |
| 14 | Post Mortem | Issues around process of investigation of cause of death | |
| 15 | Nutrition | Food intake not being monitored Specialist diet requirements not being met e.g. Parkinson’s |
|
| 16 | Additional help and support (Q29) | 16.1 Person-centered 16.2 Patient preference 16.3 Equity of access 16.4 Safe practice/environment 16.5 Good communication 16.6 Poor communication 16.7 Shared decision making/participation 16.8 Privacy 16.9 Symptom Management 16.10 Physical environment 16.11 Family Support 16.12 Coordination of care 16.13 Patient care needs 16.14 Post Mortem 16.15 Nutrition 16.16 Access to palliative care 16.17 Methodology 16.18 General Comments |
Q29 very specifically worded about additional help and support that relative would have liked – need to capture these responses separately so code here. |
| 17 | Access to palliative care | ||
| 18 | Methodology | 18.1 Helpful or beneficial 18.2 Thankful for the opportunity |
|
| 19 | General Comments |