Table 1.
Study instruments
Outcome | Instrument | Reliability/Validity | Items and Scoring |
---|---|---|---|
Background and Clinical Details | Background and clinical details | N/A | 10 items assessing background characteristics; 13 items assessing clinical characteristics. |
Comorbidity | Charlson Comorbidity Index (CCI) [45] | Valid in predicting risk of death from comorbid disease [45]. | Combines age and number of pre-determined, serious comorbidities into a single index. All participants in this study started with a minimum score of 2 for CKD. |
CKD Knowledge | Kidney Knowledge Survey (KiKS) [38] | Adequate internal consistency (Kuder-Richardson-20 = .7) [38]; investigates knowledge of important CKD topics such as function, treatment, and BP targets. α = .7 and .8 in current study. |
28 multiple-choice items; Maximum score = 28. |
Understanding of Physical Activity Guidelines | Four items from Active Australia Survey (AAS) [40] | Assesses understanding of/agreement with physical activity guidelines. Overall instrument has good-excellent reliability (Spearman’s Rho 0.5–0.8) [44], and items used showed high reliability in this study (α = .9). | 4 Likert Scale items (1 = Strongly Disagree – 5 = Strongly Agree); Maximum score = 20. |
Self-Efficacy to Manage Chronic Disease | Self-Efficacy for Managing Chronic Disease (SEMCD-6) [36] | High internal consistency (α = .9), scales upon which instrument is based sensitive to change in disease-related self-efficacy in response to intervention [36]. α = .9 and .9 in current study. |
6 items scored 1–10. Overall scale score = mean of items 1–10. |
Depression, Anxiety, and Stress | Depression Anxiety Stress Scales (DASS-21) [39] | Distinguishes well between psychological disorders and has good-excellent internal consistency (α = .9) [73]. α = .8 - > .9 in current study. |
21 Likert Scale items (0 = Never – 3 = Almost Always). Three subscales and overall scale. Scores reported are for 21-item version and must be doubled to be compared to 42-item version scores or cut-offs. |
CKD Self-Management Behaviour | Chronic Kidney Disease Self-Management Instrument – Australian Version (Aus.CKD-SM) [37] | Adequate internal consistency (α = .7–.85) [37]. α = .6–.9 in current study. |
17 Likert Scale items (1 = Never – 4 = Always). Four subscales and overall scale. |
Physical Activity | Human Activity Profile (HAP) [42] | Used extensively in chronic disease research [74]; adequate test-retest reliability (α = .8), content validity [42]. α = .8-. > 9 in current study. |
94 items rated “still doing”, “stopped doing” and “never did”. Maximum activity score, adjusted activity score, and four research subscales. |
Alcohol Use | Alcohol Use Disorders Identification Test-Consumption Questions (AUDIT-C) [44] | Effective in detection of heavy drinking and alcohol abuse or dependence [44]. α = .7 in current study. |
Three multiple-choice questions with five response options scored 0–4; Maximum score 12; clinical cut-off of 3 for women and 4 for men. |
Fruit and Vegetable Consumption | Two questions about fruit and vegetable consumption yesterday | Directly assesses consumption of fruit and vegetable on previous day. | Two questions assessing serves of fruit and vegetables eaten on previous day, added together for total. |
Communication with Healthcare Providers | Two items from the Partners in Health Scale (PiH) [43] | Overall scale has demonstrated construct and face validity and internal consistency (α = .9) and inter-rater reliability [43]. α = .6 and .8 in current study. |
Two Likert Scale items (0 = Never – 8 = Always). Maximum score = 16. |
Health-Related Quality of Life | Short Form Health Survey-12-Item Australian v2; (SF-12) [75] | Conceptually and empirically validated [76]; adequate test-retest reliability (α = .8–.9). | 12 Likert Scale items (scales vary from 3- to 5-point). Eight subscales contribute to two overall composite scores. |