Table 2.

Glossary of Terms

HBHPC program	This term was intentionally chosen instead of IDT. It is used throughout the domain criteria for consistency. The HBHPC program includes traditional clinical members of the IDT (physicians, nurses, social workers, chaplains, and others) and also reflects those in leadership positions in the program, such as a hospice medical director, clinical director, nursing manager, and others, who may or may not regularly attend IDT meetings and/or see patients.
Shared decision making	This term reflects the inclusion of not only the HBHPC team members, but also the patient's primary providers and the child and family, in working together to develop the care plan.
Volunteers	Volunteers are required for hospice licensure and the term is thus carried over from the NCP domains. However, in the context of pediatric HBHPC programs, volunteers may require specific pediatric or homecare training and may be employed in different ways than in the traditional adult hospice model. This term is left vague for those reasons.
Relevant HBHPC outcomes	This term was chosen to reflect both those outcomes, which are evidence based, established in the field, and allow benchmarking, and those which are relevant to the pediatric HBHPC program stakeholders in specific programs.
Serious or life-threatening illnesses	This term was chosen over “life-limiting illness” to reflect that HBHPC is not limited to those children who are expected to die, but should be available to all children with serious illness. It also reflects that survival outcomes and prognoses in many areas of pediatrics are rapidly evolving as new technologies and therapies become available.
Child/children	For these purposes, “child” includes all people from the neonatal period through age 18. “Patient” as mentioned in the NCP criteria has been changed to “child” throughout this document.

NCP, National Consensus Project; IDT, interdisciplinary team; HBHPC, home-based hospice and palliative care.