TABLE 2.

Cross-sectional Demographic and Clinical Profile of Patients With SB and Distribution of Surgical Procedures and Health Outcomes; From the NSBPR, 2009–2013 (n = 3801 Patients With Complete Surgical Procedure Data)

Variable	Overall, n (%)	Myelomeningocele, n (%)	Nonmyelomeningocele, n (%)
Age distribution, y
<5	1165 (30.7)	931 (29.5)	234 (36.5)
5–9	780 (20.5)	623 (19.7)	157 (24.5)
10–14	709 (18.7)	599 (19.0)	110 (17.1)
15–19	603 (15.9)	511 (16.2)	92 (14.3)
20–24	221 (5.8)	194 (6.1)	27 (4.1)
≥25	323 (8.5)	301 (9.5)	22 (3.4)
Total	3801 (100)	3159 (83.1)	642 (16.9)
Sex
Female	1992 (52.4)	1640 (51.9)	352 (54.8)
Male	1809 (47.6)	1519 (48.1)	290 (45.2)
Total	3801 (100)	3159 (83.1)	642 (16.9)
Race and/or ethnicity
Non-Hispanic white	2492 (65.6)	2107 (66.7)	385 (60.0)
Non-Hispanic African American	295 (7.8)	265 (8.4)	30 (4.7)
Hispanic or Latino	758 (19.9)	613 (19.4)	145 (22.6)
Other	245 (6.5)	163 (5.2)	82 (12.8)
Refused or unknown	11 (0.3)	11 (0.4)	0 (0.0)
Total	3801 (100)	3159 (83.1)	642 (16.9)
Type and No. surgical procedures reported in all visits
Neurologic	11 133 (58.9)	10 269 (59.5)	864 (53.1)
Orthopedic	2936 (15.5)	2666 (15.4)	270 (16.6)
Urologic	1823 (9.7)	1651 (9.6)	172 (10.6)
Gastrointestinal	1076 (5.7)	942 (5.5)	134 (8.2)
Skin	989 (5.2)	890 (5.2)	99 (6.1)
Other	934 (4.9)	847 (4.9)	87 (5.4)
Total	18 891 (100)	17 265 (91.4)	1626 (8.6)
Prevalence of key outcomesa status reported at last visit
Fecal incontinence	1453 (59.4)	1091 (63.0)	362 (43.0)
Urinary incontinence	1482 (58.6)	1106 (62.5)	376 (40.8)
Skin breakdown	754 (16.2)	692 (18.3)	62 (7.0)
Non ambulator	1204 (28.5)	1171 (34.3)	33 (4.1)

^aWe report negative outcomes in this section of the table to facilitate risk comparisons.