Table 5.
Summary of domains and items for reviewing the questionnaires addressing values and preferences
| Domain | Study ID, author (year) | Examples | Scale | Type of disease |
|---|---|---|---|---|
| Effectiveness | ||||
| The convenience of treatment | Bolge et al (2016)48 | Would you prefer to take your biologic medication by self-injection at home or have the medication given to you by a health care professional through intravenous infusion? 1=strongly prefer self-injection, 2=somewhat prefer self-injection, 3=no preference between self-injection and intravenous infusion, 4=somewhat prefer intravenous infusion, 5=strongly prefer the intravenous infusion |
5-point scale | RA |
| Hofman et al (2011)49 | How easy or difficult it was to detach/remove the needle cap? 1=very difficult, 6=very easy |
6-point scale | Adolescents with diabetes | |
| The frequency required for testing | Calderwood et al (2011)47 | Which of the following attributes most influences your choice? The frequency required for testing Liability concerns Cost of test/coverage Complication rates |
SCQ | Colorectal cancer |
| The types of drug preparations and therapy | Welsh and Tiffin (2014)31 | How likely would you be to accept this kind of support? Usually given as tablets Tablet or liquid format Talking therapy |
4-point scale | Psychosis |
| The benefit of the interventions | Ha and Mcdonald (2017)42 | Did the medication work very well? (extremely important, slightly important, neutral, slightly not important, not at all important) | 5-point scale | Premature or early birth |
| Ha and Mcdonald (2017)42 | When considering cerclage treatment, how important or unimportant is each of the following Whether the medication works well (extremely important, slightly important, neutral, slightly not important, not at all important) |
5-point scale | Premature or early birth | |
| Sekimoto et al (2004)34 | Regarding the treatment options, what kind of information do you require? Risks and benefits Outcome probabilities Name of the famous specialist Prognosis Physician’s recommendations |
SCQ | T2DM | |
| Treatment time | Tong et al (2016)33 | If these procedures were identical in all other ways, which would you prefer? Open surgery: 3 hours Minimally invasive surgery: 3 hours Focused radiation: 1-hour outpatient visit |
SCQ | Lung cancer |
| Tong et al (2016)33 | What bothers you the most about focus radiation? Need to be still for 1 hour for each treatment The tumor is not removed, only killed Difficult traveling for outpatient treatments |
SCQ | Lung cancer | |
| The frequency of drug administration | Noble et al (2015)36 | Which frequency of administration do you prefer? Twice daily (duration of action over 24 hours) Once daily (duration of action over 12 hours) |
SCQ | Cancer-associated thrombosis |
| Sanford et al (2014)40 | How likely are you to take your medications every day? Very unlikely, unlikely, neither unlikely nor likely, likely, very likely |
5-point scale | CML | |
| Hospital stay time | Tong et al (2016)33 | What bothers you the most about open surgery? 5-night hospital stay 6- to 8-week recovery time at home |
SCQ | Lung cancer |
| Safety | ||||
| The risk of adverse effects | Bo et al (2014)30 | Reasons for treatment decision making (choose the three answers with the most consideration): Fewest side effects Physician’s recommendation Least painful |
SCQ | Lung cancer |
| The risk of complications | Ha and Mcdonald (2017)42 | When considering cerclage treatment, how important or unimportant is each of the following: Concerns about potential harm to the baby (extremely important, slightly important, neutral, slightly not important, not at all important) |
5-point scale | Premature or early birth |
| Calderwood et al (2011)47 | Which of the following attributes mostly influences your choice? The frequency required for testing Liability concerns Cost of test/coverage Complication rates |
5-point scale | Colorectal cancer | |
| Communicating the risk of the interventions | Mazur et al (1999)37 | Which do you prefer when your physician communicates to you the risk of the intervention? Words Numbers Other |
SCQ | Lung cancer |
| Sekimoto et al (2004)34 | Regarding the treatment options, what kind of information do you require? Risks and benefits Outcome probabilities Name of the famous specialist Prognosis Physician’s recommendations |
SCQ | T2DM | |
| The risk of disease transmission | Koh et al (2010)41 | If you choose the allograft, what are the reasons for it? Better healing after grafting Less expensive No risk of tissue rejection or disease transmission Surgeon’s explanation |
MCQ | ACL reconstruction |
| Prognosis | ||||
| The risk of relapse | Sanford et al (2014)40 | In the following questions, if the risk of relapse is different, how likely are you to stop medications for your CML? If the risk of relapse were 20%, 40%, 60%?, I would absolutely stop, I would likely stop, I would be neutral, I would likely not stop, I would absolutely not stop | SCQ | CML |
| Sekimoto et al (2004)34 | Regarding the treatment options, what kind of information do you require? Risks and benefits Outcome probabilities Name of the famous specialist Prognosis Physician’s recommendations |
SCQ | T2DM | |
| Matti et al (2010)38 | What is your view about having an action plan in the event of a relapse? Not interested, may be useful but unsure, will consider, will definitely have an action plan |
SCQ | Optic neuritis | |
| Better healing after treatment/recover time | Koh et al (2010)41 | If you choose the allograft, what are the reasons for it? Better healing after grafting Less expensive No risk of tissue rejection or disease transmission Surgeon’s explanation |
MCQ | ACL |
| Others | ||||
| The cost patients have to pay | Ha and Mcdonald (2017)42 | When considering cerclage treatment, how important or unimportant is each of the following Whether there would be a cost for you (extremely important, slightly important, neutral, slightly not important, not at all important) |
5-point scale | Premature or early birth |
| Calderwood et al (2011)47 | Which of the following attributes mostly influences your choice? The frequency required for testing Liability concerns Cost of test/coverage Complication rates |
SCQ | Colorectal cancer | |
| Koh et al (2010)41 | If you choose the allograft, what are the reasons for it? Better healing after grafting Less expensive No risk of tissue rejection or disease transmission Surgeon’s explanation |
MCQ | ACL reconstruction | |
| Physician’s experience | Tong et al (2016)33 | How important is your physician’s experience to you? Unimportant compared with other factors, somewhat important, very important, extremely important |
4-point scale | Lung cancer |
| Physician’s recommendation | Bolge et al (2016)48 | When deciding on a treatment for rheumatoid arthritis, which of the following best applies? 1=I make the final treatment decision, 2=I make the final treatment decision after considering my rheumatologist’s recommendations, 3=I share responsibility with my rheumatologist when deciding on a treatment, 4=my rheumatologist makes the final treatment decision, but seriously considers my opinion, 5=I leave all treatment decisions to my rheumatologist |
5-point scale | RA |
| Bolge et al (2016)48 | How open are you to having your RA medication administered at home by self-injection if your rheumatologist suggested it? 1=not at all open, 2=not very open, 3=somewhat open, 4=very open, 5=extremely open |
5-point scale | RA | |
| Sekimoto et al (2004)34 | Regarding the treatment options, what kind of information do you require? Risks and benefits Outcome probabilities Name of the famous specialist Prognosis Physician’s recommendations |
SCQ | T2DM | |
| Bolge et al (2016)48 | When deciding on a treatment for rheumatoid arthritis, which of the following best applies? 1=I make the final treatment decision, 2=I make the final treatment decision after considering my rheumatologist’s recommendations,3=I share responsibility with my rheumatologist when deciding on a treatment, 4=my rheumatologist makes the final treatment decision, but seriously considers my opinion, 5=I leave all treatment decisions to my rheumatologist |
5-point scale | RA | |
| Koh et al (2010)41 | If you choose the allograft, what are the reasons for it? Better healing after grafting Less expensive No risk of tissue rejection or disease transmission Surgeon’s explanation |
MCQ | ACL reconstruction | |
| Bo et al (2014)30 | Reasons for treatment decision-making: (choose the three answers with the most consideration) Fewest side effects Physician’s recommendation Least painful |
SCQ | Lung cancer | |
| Initiation of the decision process | Maciver et al (2016)39 | Who do you think should start these discussions? Would you want the physician to wait until you asked about it or would you want the physician to start the discussion? |
OeQ | ICD treatment |
Abbreviations: ACL, anterior cruciate ligament; CML, chronic myeloid leukemia; ICD, implantable cardioverter-defibrillators; MCQ, multiple-choice question; OeQ, subjective questions; RA, rheumatoid arthritis; SCQ, single-choice questions; T2DM, type 2 diabetes mellitus.