Table 3.

Overview of studies included in the review

(a) MIBC population
17 Mak et al., 2016
Setting	Postal study in USA using English language EQ‐5D‐5L (version not reported) and EORTC QLQ‐BLM30
Cohort	Patients with non‐metastatic MIBC with radical cystectomy >2 years disease free. 226 eligible, 177 returned questionnaires. 25% of 109 radical cystectomy patients (median age 73 years) and 22% of 64 trimodality therapy (median age 76 years), 100% female
18 Liu et al., 2016
Setting	Recruited from Department of Urology, West China Hospital. Completed Chinese language version of WHOQOL‐BREF
Cohort	MIBC with ileal conduit diversion with a postoperative period of 1 month to 2 years, 188 questionnaires returned, 66% aged ≥60 years, 19% female
21 Moncrief et al., 2017
Setting	Postal study in USA using English language BCI and FACT‐VCI
Cohort	64 patients with MIBC with ileal conduit diversion (median age 72 years) or neobladder (median age 63 years), 25% female
29 Anderson et al., 2012
Setting	Recruited from Vanderbilt University and University of Chicago, USA. Completed English language FACT‐VCI
Cohort	190 patients with MIBC with radical cystectomy and urinary diversion, median (sd) age 67 (10) years, 39% female
30 Cookson et al., 2003
Setting	Postal study in USA using English language FACT‐VCI
Cohort	40 patients with MIBC with ileal conduit or neobladder, mean (range) age 67.5 (42–87) years, 17% female
31 Stenzelius et al., 2016
Setting	Recruited ≥1 year after surgery from Skåne University Hospital, Sweden. Completed Swedish language version of FACT‐VCI, which had been translated as part of the study
Cohort	63 patients with MIBC with urinary diversion, mean (sd) age 69.8 (9.1) years, 18% female
32 Siracusano et al., 2014
Setting	Recruited from five Italian University clinics. Completed Italian language IONB‐PRO
Cohort	171 patients with MIBC with orthotopic neobladder, mean (sd) age 64.3 (9.4) years, 9% female
35 Caffo et al., 1996
Setting	Postal study in Italy using Italian language ad hoc PROM
Cohort	59 patients with T2–T3 MIBC; 30 cystectomy [median (range) age 71 (49–84) years, 13% female] and 29 conservative treatment [median (range) age 72 (40–86) years, 21% female]
36 Bjerre et al., 1995
Setting	Postal study and recruitment from outpatient clinics in Denmark using Danish language ad hoc PROM
Cohort	67 non‐malignant patients with MIBC with urinary diversion. Excluded from study if aged ≥80 years, median (range) age 68.2 (50.8–75.7) years, 0% female
37 Hart et al., 1999
Setting	Postal study in USA using English language ad hoc PROM
Cohort	224 patients with MIBC with cystectomy and either ileal conduit [mean (range) age 76.2 (58–91) years], Koch pouch [mean (range) age 70.6 (49–97) years] or urethral diversion [mean (range) age 67.3 (37–86) years], 24% female
38 Henningsohn et al., 2002
Setting	Postal study in Denmark using a Swedish to Danish translation of ad hoc PROM
Cohort	89 patients with MIBC with urinary diversion (mean age 64 years) and a control group (mean age 65 years), 10% of controls and patients female
(b) NMIBC population
19 Blazeby et al., 2014
Setting	Recruited from Bladder COX‐2 Inhibition Trial (BOXIT). Completed English language EORTC QLQ‐C30 and EORTC QLQ‐NMIBC24 before treatment in UK clinic at 2, 3, 6, and 12 months
Cohort	433 patients with NMIBC; 74.6% high risk, Ta 167 (41%), T1 167 (41%), Tis 45 (11%), Ta/Tis 17 (4%) and T1/Tis 14 (3%). Mean (sd) age 66.7 (9.3) years, 21% female
20 Wei et al., 2014
Setting	Recruited from The People's Hospital of Guangxi Zhuang Autonomous Region, China. Completed Chinese language EORTC QLQ‐C30 before treatment and 6 weeks after treatment
Cohort	106 patients with NMIBC, 33% high risk, 57% aged ≥60 years, 23% female
34 Mogensen et al., 2016
Setting	Postal study in Denmark 1 week after discharge using Danish language EORTC QLQ‐NMIBC24
Cohort	121 patients with NMIBC; pTa 68 (56%), pT1a 7 (6%), carcinoma in situ 9 (7%), mean (range) age 71 (41–96) years, 31% female
33 Abáigar‐Pedraza et al., 2016
Setting	Primary care in Spain using Spanish language CAVICAVENMI
Cohort	180 patients with NMIBC, age and percentage of females not reported
(c) All patients with BC
22, 23 Gilbert et al., 2007; 2010
Setting	Postal study in USA using English language BCI
Cohort	315 patients; Ta, Tis, T1 166 (53%), T2–T4 119 (38%), Unknown 30 (9%), median (range) age 69 (41–89) years, 18% female
24 Heyes et al., 2016
Setting	Postal and recruitment at hospitals, private clinics and support groups in Australia. Completed English language BCI
Cohort	119 patients with NMIBC and MIBC, mean (sd) age 70.7 (9.6) years, 26% female
25 Schmidt et al., 2014
Setting	Multicentre prospective study using Spanish language BCI, which had been translated as part of the study
Cohort	197 patients; Tx: 5 (2.5%), Ta: 58 (29.4%), Tis: 5 (2.5%), T1: 102 (51.8%), T2a: 16 (8.1%), T2b: 6 (3%), T3: 3 (1.5%), T4: 2 (1%), Missing: 11 (5.6%), mean (sd) age 69.3 (11) years, 13% female
26 Li et al., 2016
Setting	Recruited from First Hospital of China Medical University. Completed Chinese language FACT‐Bl
Cohort	365 patients, Stage 1: 233 (64%), Stages 2 and 3: 127 (35%), age 18–55 years, 74 (20%); 56–65 years, 125 (34%); 66–75 years, 115 (32%); >75 years, 51 (14%), 20% female
27, 28 Matsuda et al., 2003; 2004
Setting	Postal survey of patients chosen from Isere registry and Tarn registry in France using French language FACT‐Bl
Cohort	95 patients, 80% had a superficial tumour, pTa or pT1, and 20% survivors had pT2 or higher median (range) age 72 (33–99) years, 18% female
16 Hever et al., 2015
Setting	Recruited from three hospital‐based urology centres in Hungary. Completed Hungarian language EQ‐5D (version not reported), SF‐36, BCI and FACT‐Bl
Cohort	151 patients, T1: 43 (28%), T2: 14 (9%), T3: 6 (4%), T4: 1 (1%), Ta: 57 (38%), Tis: 4 (3%), Tx: 4 (3%), missing data: 22 (14%), mean (sd) age 66.3 (9.6) years, 35% female