Table 4.

Participant responses to background questions about health management.

Health characteristic	Pay attention (% of n=5)	Record/log information	Information shared with clinicians at clinic visits (% of n=5)
Weight	100%	Only one individual logged weight in a notebook	100%*
Blood Pressure	80%	Two individuals recorded their blood pressure either using a store-bought blood pressure monitoring system or on paper	100%*
Heart Rate	40%	No individual recorded heart rate	100%*
Diet	100%	Only one individual logged dietary information on paper	40%
Overall health	60%	Two individuals recorded their overall wellbeing either as a mental note or on paper	80%

^*participants reported that these vitals are most often measured and recorded in the patient’s electronic health record during their visit; they are rarely shared outside of the clinical setting.