Table 1.

Participant quotations supporting the themes in the category Being Heard.

Category and theme		Quotations
Being Heard
	Knowing More	“I mean when I say empower, it empowers me, I would say it just gives me the confidence to know whether I’m asking the right questions or I have asked the right questions.” “It (the CHIP information) makes me a little bit more empowered to help make those decisions.” “Empowerment, so you can understand and know what’s going on.” “To be empowered means to be aware of what is happening with your health.” “I can look up and see that information, make decisions, have less repetitive questions with my doctor and focus on the things that I really need to know.” “It’s helping me assume responsibility and to be knowledgeable and I think to just be better prepared when I go see the doctor so I can ask meaningful questions.” “You’re not anxious about it and, you know, if you’re worried about something, you have a resource now that kind of tells you where to go with it or helps you determine where to go with it.” “I think it provides me with some peace of mind, because like I said, instead of hoping and being pretty sure it’s all fine, you can look, and you can know.”
	Seeing What They See	“If I can see what they are seeing maybe in a little bit in advance, then I can be better prepared when I go to my doctor’s office; like have my list of questions ready.” “I go back and look at my numbers, try to make some changes right there. So it gives me more up-to-date information and not having to wait to get in to see the doctor if there was something that’s off. If it’s something that I’d try to control myself like the blood sugar levels or A1C then that’s something that I can take into my own consideration.” “CHIP has literally been a lifesaver for me, because I’ve been able to get my results before I even see the doctors, I’m able to formulate the questions that I need to ask the doctor and get far more engaged in my health care.” “To be empowered means to be aware of what is happening with your health, and test results can help that. Information from doctors and health care people can help that, and that way you can make the changes and adjustments that you may need to be well.”
Moving Forward
	Owning Future Steps	“When I become engaged in my healthcare and utilizing the resources I can access, I try to garner enough knowledge and understanding to feel empowered to take the next step.” “It has become very apparent the importance of informed self-care, not taking the doctors and the health professionals out of the equation, but to be able to take some of that information and look at what I can do as an individual to help myself.” “I need to be able to manage that, because I’m the one that’s doing it every day.” “I can see that it’s vital, the way they we’re moving, that we have that self-empowerment that comes from using this information, having access and using this information ourselves.” “Well, I think something like that will give you more empowerment because it’ll give you a track to follow, it should give you something to follow, and I think that there’s even something else that could be done with that, in terms of empowering your healthcare.”
	Promoting Future Care	“I think if you want people engaged in the health system, you need to make the health system accessible, and I think this is certainly one way to do it.” “I think this type of technology will also empower physicians to be able to give patients better care, or more timely care.” “So I think that when you talk about technology and what it means, I think it’s just endless. There’s so much and I think it really has a future that will allow for a whole different kind of coordination and communication.” “CHIP is wonderful. I want very much for it to continue and I would encourage over time for more information to be shared on it, I mean things like perhaps radiologist reports and those kinds of things.” “I think it’s a great idea, I really do. We live in a technology age, we’re in an online age. People want information at their fingertips, they do a lot of this kind of stuff from home or from their smartphone or whatever. I think this is an idea whose time is here.” “I personally think it’s amazing, obviously, it has its limitations, but the only challenge will be presenting it in a way that people with different demographics and all types of background will accept it and be on board.” “I have mixed feelings about the increasing presence [of technology]. I love the access, I like the idea that if I needed care in a hurry people would have access to my information. I think that the more that happens the better, but the trade-off of that is the risk of somebody going in and looking at your information to use it to do you harm.” “Well, I’m probably as ambivalent as a lot of people are. Worrying a bit about security of information, enjoying having the access to it but still kind of okay, is it secure? How secure is it?” “Technology is, I mean I see it as a double-edged sword. It’s lifesaving and also costly as heck. I’m sure this whole CHIP thing doesn’t come for free but as a service I think it’s very—however much it costs— I’m hoping it’s not too much that they don’t find that it’s not worthwhile, because I think that it is (worthwhile) if it’s affordable.”