Table 3.
Clinical and psychosexual characteristics of women with gestational trophoblastic disease and members of Facebook group of the Brazilian Association of gestational trophoblastic disease.
| Variables | Treated at reference centers (n=176) | Not treated at reference centers (n=180) | P value | |
| At what point in the GTDa treatment do you find yourself?, n (%) | .22b | |||
|
|
Waiting for molar evacuation | 2 (1.1) | 1 (0.6) | —c |
|
|
Postmolar follow-up | 30 (17.0) | 33 (18.3) | — |
|
|
Chemotherapy | 9 (5.1) | 4 (2.2) | — |
|
|
Spontaneous remission | 96 (54.5) | 114 (63.3) | — |
|
|
Remission after chemotherapy | 39 (22.2) | 28 (15.6) | — |
| Regarding thisd statement, how do you evaluate your experience when you received the diagnosis of GTD?, n (%) | .001b | |||
|
|
Strongly agree | 84 (47.7) | 53 (29.4) | — |
|
|
Agree | 40 (22.7) | 49 (27.2) | — |
|
|
Neither agree or disagree | 0 (0.0) | 4 (2.2) | — |
|
|
Disagree | 14 (8.0) | 15 (8.3) | — |
|
|
Strongly disagree | 38 (21.6) | 59 (32.8) | — |
| What contributed to the negative experience when you were diagnosed with GTD?, n (%) | ||||
|
|
The doctors used complicated words, which made it difficult for me to understand | 12 (6.8) | 20 (11.1) | .16e |
|
|
The doctors have not explained my disease at all | 32 (18.2) | 55 (30.6) | .007e |
|
|
Although the doctors explained to me about GTD, I did not understand | 10 (5.7) | 19 (10.6) | .09e |
|
|
The doctors did not explain how my treatment should be | 35 (19.9) | 43 (23.9) | .36e |
|
|
The doctors did not explain where my treatment should be | 30 (17.0) | 35 (19.4) | .56e |
|
|
I did not get to schedule my appointment quickly in the reference center | 7 (4.0) | 9 (5.0) | .64e |
| During postmolar follow-up, how are you avoiding pregnancy?f n (%) | ||||
|
|
Hormonal methods | 121 (68.8) | 86 (47.8) | <.001b |
|
|
Condom | 38 (21.6) | 53 (29.4) | .09b |
|
|
Behavioral contraceptive methods | 19 (10.8) | 29 (16.1) | .14e |
| Regarding the location of my treatment, n (%) | <.001b | |||
|
|
I started in the public health system, where I underwent all my treatment | 106 (60.2) | 60 (33.3) | — |
|
|
I started in the public health system, but then I went to the private health system where I underwent all my treatment | 1 (0.6) | 7 (3.9) | — |
|
|
I started in the private health system, but then I went to the public health system where I underwent all my treatment | 29 (16.5) | 16 (8.9) | — |
|
|
I started in the private health system, where I underwent all my treatment | 10 (5.7) | 76 (42.2) | — |
|
|
I am undergoing my treatment at both services (public and private) | 30 (17.0) | 21 (11.7) | — |
| How is the relationship with your partner after the diagnosis of GTD? (N=355)g, n (%) | .48b | |||
|
|
GTD made us nearer | 62 (35.4) | 47 (26.1) | — |
|
|
Our relationship is the same | 87 (49.7) | 105 (58.3) | — |
|
|
I feel that my relationship is getting weaker | 15 (8.6) | 14 (7.8) | — |
|
|
I broke up my relationship by my own initiative | 6 (3.4) | 7 (3.9) | — |
|
|
My partner left me | 3 (1.7) | 3 (1.7) | — |
|
|
I had no stable relationship | 2 (1.1) | 4 (2.2) | — |
| How has your sex life been since you were diagnosed with GTD?, n (%) | .37e | |||
|
|
Similar | 112 (63.6) | 125 (69.4) | — |
|
|
Better | 12 (6.8) | 6 (3.3) | — |
|
|
Worse | 38 (21.6) | 33 (18.3) | — |
|
|
I do not have a sex life | 14 (8.0) | 16 (8.9) | — |
|
|
I have at least one child | 82 (46.6) | 93 (51.7) | .34e |
| Would get pregnant again?, n (%) | .37e | |||
|
|
Yes | 113 (64.2) | 127 (70.6) | — |
|
|
Maybe | 32 (18.2) | 24 (13.3) | — |
aGTD: gestational trophoblastic disease.
bLikelihood ratio test.
cNot applicable.
d When I first received the diagnosis of molar pregnancy, known as hydatidiform mole or gestational trophoblastic disease (GTD), my attending team informed me in a accessible (understandable) and enlightening way what was all this disease about, where and what would be my treatment (and follow-up). I started my treatment quickly after that and felt myself safe and confident.
eChi-square test.
fMore than one option could be opted.
gOne patient did not respond to this question.