Skip to main content
. Author manuscript; available in PMC: 2019 Dec 1.
Published in final edited form as: J Empir Res Hum Res Ethics. 2018 Oct 8;13(5):494–510. doi: 10.1177/1556264618804962

Table 2:

Benefits Codes

Sub-Code Definition
Change in Benefit Perceptions Participants’ reflections on how their perceptions of or their feelings about the benefits have changed
Economic Benefit Perceived benefits of clinical trial participation as economic/financial
Household Economic benefit is articulated as supporting family/bills/household
Investment Clinical trial money is described as having an investment purpose (starting business, purchasing property such as cars or rentals, etc.)
Others Clinical trial money is described as being used for or given to others (college tuition, sick relative, etc.)
Self Clinical trial money is described as being used for personal consumption (new consumer item) or used for travel and vacation funds
Health Benefit Clinical trials are seen as generating positive changes to personal health and increase in health-promoting behaviors; Screening perceived as providing important information about health
Networking Benefit Participants perceive the development of relationships or friendships in clinical trials as a benefit
Personal Benefit Participants describe a non-financial benefit to themselves, such as self-improvement, personal growth, lifestyle, flexibility, downtime/time away
Societal Benefit Participants describe how their participation might help others who are sick and need medicine or might advance medicine more generally