Table 1.
Themes | Descriptions |
---|---|
1. Patient-Focused | Influences |
Social Influences: The relationship patients have with family, friends, clinicians, and other patients | • Past experiences with dialysis • Being married/living with a partner • Partnership with nephrologist • Experiences of other patients |
Values and Beliefs: What is most important to patients and the beliefs they hold | • Individualized standardization of care • Preservation of QOL and lifestyle • Differing values between HD/PD users • Performance indicators less valued by patients • Values and beliefs change over time |
Comprehension: The degree to which patients understand the information they are being educated with | • Quality of predialysis education • Amount of end-of-life support • Gap between perceived and actual knowledge • Low health literacy and numeracy • Lack of tailored education |
Autonomy: Patients’ need for control over their health and the amount of independence in decision making | • Lack of knowledge curtails autonomy • Level of confidence • Decisional conflict • Lack of “choice” over dialysis |
Sociodemographics: Patients’ age, sex, race, comorbidities, and socioeconomic status | • Lower informed and executive level decision making with
age • Complexity managing comorbidities • Lower health-related QOL in women • Lower rates of kidney transplantation in those of low socioeconomic status • Poorer access to care and mistrust in those of ethnic minorities |
2. Clinician-Focused | Practical Implications |
Screening: Exposing potential patient barriers to effective education and SDM | • Screen for: psychological/cognitive status, level of function,
preferences, health literacy and behavioral stage of
change • Cognitive Behavioral Therapy/Psychoeducation • Geriatric Assessment • Health literacy screening tools |
Communication: Utilizing effective methods of transferring knowledge to patients | • Structured education sessions covering all RRT
options • Motivational interviewing • Framing information and risk • Personalizing information • 3-step SDM model • Improved support for caregivers • Role clarification between specialists |
Engagement: Encouraging patients to become active members of the health care team | • Decision aids • Utilize patient technology • Patient-held records • Education via social media • SDM with multidisciplinary team |
Note. RRT = renal replacement therapy; SDM = shared decision-making; QOL = quality of life; HD = hemodialysis; PD = peritoneal dialysis.