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. 2018 Nov 2;5:2054358118803322. doi: 10.1177/2054358118803322

Table 1.

Summary of Patient-Focused Themes That Influence RRT Decision Making and the Various Solutions to Overcome Patient Barriers to Education and SDM via Clinician-Focused Themes.

Themes Descriptions
1. Patient-Focused Influences
Social Influences: The relationship patients have with family, friends, clinicians, and other patients • Past experiences with dialysis
• Being married/living with a partner
• Partnership with nephrologist
• Experiences of other patients
Values and Beliefs: What is most important to patients and the beliefs they hold • Individualized standardization of care
• Preservation of QOL and lifestyle
• Differing values between HD/PD users
• Performance indicators less valued by patients
• Values and beliefs change over time
Comprehension: The degree to which patients understand the information they are being educated with • Quality of predialysis education
• Amount of end-of-life support
• Gap between perceived and actual knowledge
• Low health literacy and numeracy
• Lack of tailored education
Autonomy: Patients’ need for control over their health and the amount of independence in decision making • Lack of knowledge curtails autonomy
• Level of confidence
• Decisional conflict
• Lack of “choice” over dialysis
Sociodemographics: Patients’ age, sex, race, comorbidities, and socioeconomic status • Lower informed and executive level decision making with age
• Complexity managing comorbidities
• Lower health-related QOL in women
• Lower rates of kidney transplantation in those of low socioeconomic status
• Poorer access to care and mistrust in those of ethnic minorities
2. Clinician-Focused Practical Implications
Screening: Exposing potential patient barriers to effective education and SDM • Screen for: psychological/cognitive status, level of function, preferences, health literacy and behavioral stage of change
• Cognitive Behavioral Therapy/Psychoeducation
• Geriatric Assessment
• Health literacy screening tools
Communication: Utilizing effective methods of transferring knowledge to patients • Structured education sessions covering all RRT options
• Motivational interviewing
• Framing information and risk
• Personalizing information
• 3-step SDM model
• Improved support for caregivers
• Role clarification between specialists
Engagement: Encouraging patients to become active members of the health care team • Decision aids
• Utilize patient technology
• Patient-held records
• Education via social media
• SDM with multidisciplinary team

Note. RRT = renal replacement therapy; SDM = shared decision-making; QOL = quality of life; HD = hemodialysis; PD = peritoneal dialysis.