Table 1.
Descriptive characteristics of the studies included in the review
| Characteristic | Number of articles | Percentage of studies |
|---|---|---|
| Geographic region | ||
| Canada | 1 | 5 |
| United States | 5 | 25 |
| Germany | 2 | 10 |
| Italy | 2 | 10 |
| Spain | 4 | 20 |
| The Netherlands | 3 | 15 |
| Finland | 1 | 5 |
| European (multinational) | 1 | 5 |
| Republic of Georgia | 1 | 5 |
| Date of publication | ||
| 2016‐2017 | 8 | 40 |
| 2011‐2015 | 3 | 15 |
| 2006‐2010 | 2 | 10 |
| 2001‐2005 | 4 | 20 |
| 2000 or before | 3 | 15 |
| Study purpose | ||
| Characterize the haemophilia population | 6 | 30 |
| Evaluate health services | 4 | 20 |
| Evaluative an intervention | 4 | 20 |
| Develop a measurement tool | 6 | 30 |
| Study design | ||
| Cross‐sectional | 12 | 60 |
| Prospective cohort study | 2 | 10 |
| Methodological | 6 | 30 |
| Types of relational constructs assessed | ||
| Working alliance | 1 | 5 |
| Socio‐emotional element | 7 | 35 |
| Communication behaviour | 4 | 20 |
| Satisfaction with health services | 8 | 40 |
| Study population diagnosis | ||
| Haemophilia | 15 | 75 |
| Mixed inherited bleeding disorders | 3 | 15 |
| Mixed haematological conditions | 1 | 5 |
| Haemophilia carriers | 1 | 5 |
| Study population ages | ||
| Adults | 5 | 25 |
| Adult and paediatric patients | 8 | 40 |
| Paediatric patients and parents | 3 | 15 |
| All ages and parents/caregivers | 4 | 20 |
| Disciplines assessed | ||
| Physician | 8 | 40 |
| Nurse | 5 | 25 |
| Physical therapist | 3 | 15 |
| Social worker | 3 | 15 |
| Nonspecific haemophilia health‐care providers | 10 | 50 |
| Other services | 2 | 10 |