Table 2.
Disclosed Child and Caregiver Disclosure Related Experience (n = 24)
| Variable | n (%), Mean |
|---|---|
| Child’s Age at disclosure (years) | |
| 6–10 | 1 (4.2) |
| 11–14 | 9 (37.5) |
| >14 | 14 (58.3) |
| Mean | 10.4 |
| Time frame of disclosure after child’s diagnosis | |
| <1 year | 5 (20.8%) |
| 1–5 years | 10 (41.7%) |
| > 5 years | 9 (37.5%) |
| Caregiver supported by health provider in disclosing | |
| Yes | 16 (66.7) |
| No | 8 (33.3) |
| Caregiver level of confidence at disclosing | |
| Confident | 6 (25.0) |
| Somehow confident | 10 (41.7) |
| Not at all confident | 8 (33.3) |
| Reasons for the disclosurea | |
| Child has reached puberty and is of age | 69 (87.3) |
| Child increasingly becoming curious about daily medications | 57 (72.2) |
| Child inquisitiveness about routine clinic attendance | 56 (70.9) |
| Child has started talking about sex and sexual relationship | 54 (68.4) |
| My healthcare provider asked me to disclose and offered Support | 59 (74.7) |
a multiple responses