Table 5.
Caregivers barrier to the disclosure process
| Barriers | |||||||
|---|---|---|---|---|---|---|---|
| Lack of Education | Fear of stigmatization | Fear of hurting child | Discouragement | Disrupting child’s education | Fear of divorce | Untimeliness | |
| My care provider did not teach me how/what to tell child | 0.807 | ||||||
| I do not know the exact age to disclose | 0.723 | ||||||
| I don’t know how child will react and how to manage such reactions | 0.645 | ||||||
| I feel guilty/ashamed for transmitting the infection | 0.635 | ||||||
| I do not know how to explain sex to child if asked how he/she got infected | 0.498 | ||||||
| I don’t know how my religious members will think of me | 0.768 | ||||||
| I may lose my job if others get to know through my child | 0.733 | ||||||
| I am afraid to lose my social status | 0.699 | ||||||
| I have witnessed families who face stigma and discrimination because they disclosed. | 0.628 | ||||||
| Protect the child from depressing information. | 0.777 | ||||||
| Fear of rejection by the child | 0.727 | ||||||
| I am afraid the child might not be able to keep the diagnosis a secret leading to social rejection | 0.657 | ||||||
| My family discouraged me from disclosing | 0.778 | ||||||
| In the past I tried to disclose but I failed | 0.706 | ||||||
| My friends discouraged me from disclosing | 0.572 | ||||||
| My in-laws will distrust me and I will lose my marriage if through child others get to know | 0.842 | ||||||
| My family will disown me should they hear of my child’s diagnosis | 0.642 | ||||||
| Disclosure will cause lack of concentration in school | 0.779 | ||||||
| Disclosure will decrease child’s quality of life | 0.456 | ||||||
| Child is too young to know or understand | 0.753 | ||||||
| Disclosing to children before their teen years will not make any difference to the child | 0.535 | ||||||