Table 1.

Summary of resident data collected by care home staff, outcome measures and time schedule

Data collected and tool used		Pre-intervention	Monthly	At 6 months or death
Socio-demographics	Age, gender, ethnicity, existing medical conditions, stage of dementia on Functional Assessment of Staging of Alzheimer’s Disease score	x	x	x
Quality of dying	Measure to assess quality of death using CAD-EOLD (Comfort Assessment in Dying with Dementia)47 48	x	x	x
Quality of life of the person with dementia	EQ-5D-5L38 self-rated health index and visual analogue scale of current health state	x	x	x
Neuropsychiatric Inventory (Neuropsychiatric Inventory–Questionnaire)	Measure to assess psychiatric state of resident using NPI-Q39	x	x	x
Pain	Measure to assess level of pain using PAIN-AD35	x	x	x
Quality of life	EQ-5D-5L	x	x	x
ICECAP Supportive Care Measure	Health economic measure using ICEPCAP-SCM39	x	x	x
ICECAP-O measure (CEpop CAPability measure for Older people)	Health economic measure using ICEPCAP-O49	x	x	x	–
Cohen-Mansfield Agitation Inventory	Measure to assess resident agitation36	x	x	x
ICECAP Supportive Care Measure using Think Aloud	Health economic measure using ICEPCAP-SCM using Think Aloud	x	x	x
ICECAP-O measure using Think Aloud	Health economic measure using ICECAP-O using Think Aloud	x	x	x