Comparison of ICD-9-CM codes in the identification of major types of MDs from the 2007 to 2011 MD STARnet pilot. Codes listed are ICD-9-CM codes: 359.0: congenital hereditary MD (includes CMD), 359.1: hereditary progressive MD (includes DBMD, Distal, EDMD, FSHD, LGMD, OPMD, and MD-NOS), 359.21: myotonic muscular dystrophy (myotonic dystrophy). *Other indicates that cases were identified by ICD-10 code or other method. MD STARnet = muscular dystrophy surveillance, tracking and research network; MD = muscular dystrophy; CMD = congenital muscular dystrophy; DBMD = Duchenne and Becker muscular dystrophy; EDMD = Emery–Dreifuss muscular dystrophy; FSHD = facioscapulohumeral muscular dystrophy; LGMD = limb-girdle muscular dystrophy; DM = myotonic dystrophy; OPMD = oculopharyngeal muscular dystrophy; MD-NOS = muscular dystrophy-not otherwise specified