TABLE 1.

Potential and eligible records screened in the 2007–2011 MD STARnet pilot, by ICD code or other method

Method of record identification	Records screened (n = 5,243)	Screened records of eligible cases (n = 2,862)	Percent of records deemed eligible
ICD-9-CM
359.0	601	109	18.1
359.1	2,629	1,435	54.6
359.21	1,030	807	78.3
ICD-10
G71.0	71	17	23.9
G71.1	44	18	40.9
Othera	1,096	665	50.5
Totalb	5,471	3,051	55.8

Note. ICD-9-CM codes listed are: 359.0 congenital hereditary muscular dystrophy, 359.1 hereditary progressive muscular dystrophy, 359.21 myotonic muscular dystrophy. ICD-10 codes listed are: G71.0 muscular dystrophy and G71.1 myotonic disorders. MD STARnet = muscular dystrophy surveillance, tracking and research network; ICD-9-CM = International Classification of Diseases, Ninth Revision, Clinical Modification; ICD-10 = International Classification of Diseases, Tenth Revision.

^aCases where ICD code was not documented were found through source lists that did not use ICD codes such as Duchenne or Becker muscular dystrophy cases already in the MD STARnet database and lists from sources that did not use ICD codes to identify cases.

^bSome cases were found at more than one source so number of records is greater than number of cases screened.