Table 4.
Caregiver demographics characteristics by country
| USA | Spain | Total | ||
|---|---|---|---|---|
| Caregivers with ATTR amyloidosis n = 13 |
Caregivers without ATTR amyloidosis n = 11 |
Caregivers without ATTR amyloidosis n = 8 |
N = 32 | |
| Caregiver characteristics | ||||
| Age, years, mean (SD) | 60.1 (12.9) | 52.9 (12.9) | 52.8 (12.1) | 55.9 (12.8) |
| Female, n (%) | 6 (46.2) | 9 (81.8) | 7 (87.5) | 22 (68.8) |
| Not currently employed, n (%) | 10 (76.9) | 4 (36.4) | 5 (62.5) | 19 (59.4) |
| Relationship to the ATTR amyloidosis patient, n (%) | ||||
| Spouse/partner | 9 (75.0) | 6 (66.7) | 6 (75.0) | 21 (72.4) |
| Mother | 1 (8.3) | 0 (0.0) | 2 (25.0) | 3 (10.3) |
| Father | 0 (0.0) | 1 (11.1) | 0 (0.0) | 1 (3.4) |
| Child | 1 (8.3) | 2 (22.2) | 0 (0.0) | 3 (10.3) |
| Other | 1 (8.3) | 0 (0.0) | 0 (0.0) | 1 (3.4) |
| Age at disease onset, years, mean (SD)a | 58.2 (11.3) | – | – | – |
| Disease duration, years, mean (SD) | 5.1 (2.7) | – | – | – |
SD standard deviation
aAge at disease onset = age at time of survey minus the number of years experiencing symptoms