Table I.
Characteristics of the Sample (n=80)
| Characteristics | N (%) |
|---|---|
| Child gender | |
| Female | 33 (41.3) |
| Male | 47 (58.8) |
| Child age | |
| 7 – 12 | 33 (41.3) |
| 13 – 17 | 31 (38.8) |
| 18+ | 16 (20.0) |
| Relationship to child | |
| Mom | 57 (71.3) |
| Dad | 19 (23.8) |
| Other | 2 (2.6) |
| Parent marital status | |
| Married/living with partner | 60 (75.1) |
| Not married | 18 (24.9) |
| ”Lone Parent” when it comes to caring for child with NF | 28 (35.0) |
| Child race | |
| White | 58 (72.5) |
| Black or African American | 5 (6.3) |
| Asian/Pacific Islander | 1 (1.3) |
| Biracial | 8 (10.0) |
| Missing | 1 (1.3) |
| Child Ethnicity | |
| Latino | 7 (8.8) |
| Child learning disorder/psychiatric dx | |
| Learning disorder | 40 (50.0) |
| ADHD | 27 (33.8) |
| Anxiety | 13 (16.3) |
| Depression | 11 (13.8) |
| Household Income | |
| Less than $1,000 per month | 5 (6.3) |
| $1,000-$1,999 per month | 10 (12.5) |
| $2,000-$2,999 per month | 13 (16.3) |
| $3,000-$3,900 per month | 10 (12.5) |
| $4,000-$4,900 per month | 10 (12.5) |
| $5,000-$5,999 per month | 4 (5.0) |
| More than $6,000 per month | 78 (32.5) |
| Missing | 2 (2.5) |
| Disease Severity | Mean (range) |
| Lansky (<18 years) | 92.5 (60–100) |
| Karnofsky (18+ years) | 85.9 (70–100) |