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. Author manuscript; available in PMC: 2019 Feb 1.
Published in final edited form as: J Genet Couns. 2017 Jul 23;27(1):115–123. doi: 10.1007/s10897-017-0128-1

Table III.

DT Symptoms by Age and Rater

Symptom 13–17 18+
Patient
(n=30)
n (%)
Caregiver
(n=31)
n (%)
Patient
(n=16)
n (%)
Caregiver
(n=14)
n (%)
Emotional
Worry/Anxiety 12 (40.0) 19 (61.3) 8 (50.0) 8 (57.1)
Nervousness 9 (30.0) 16 (51.6) 8 (50.0) 2 (14.3)
Sadness/Depression 5 (16.7) 8 (25.8) 6 (37.5) 2 (14.3)
Loneliness/Feeling Isolated 2 (6.7) 6 (19.4) 5 (31.3) 2 (14.3)
Boredom/Apathy 14 (46.7) 10 (32.3) 9 (56.3) 2 (14.3)
Irritability 5 (16.7) 10 (32.3) 4 (25.0) 5 (35.7)
Anger 6 (20.0) 5 (16.1) 2 (12.5) 1 (7.1)
Physical
Pain 11 (36.7) 12 (38.7) 9 (56.3) 5 (35.7)
Nausea 3 (10.0) 6 (2.5) 2 (12.5) 2 (14.3)
Fatigue 9 (30.0) 9 (29.0) 5 (31.3) 2 (14.3)
Difficulty falling asleep 5 (16.7) 3 (9.7) 3 (18.8) 1 (7.1)
Difficulty staying asleep 4 (13.3) 4 (12.9) 4 (25.0) 2 (14.3)
Practical
School 14 (46.7) 17 (54.8) 4 (25.0) 5 (35.7)
Work 2 (6.7) 2 (6.5) 2 (12.5) 2 (14.3)
Not taking or missing
medications
7 (23.3) 2 (6.5) 1 (6.3) 1 (7.1)
Spiritual
Feeling distanced from God 2 (6.7) 1 (3.2) 2 (12.5) 0 (0.0)
Family/Social
Dealing with parents 6 (20.0) 6 (19.4) 2 (12.5) 3 (21.4)
Dealing with siblings 14 (45.7) 10 (32.3) 2 (12.5) 1 (7.1)
Family issues 5 (16.7) 5 (16.1) 3 (18.8) 1 (7.1)
Dealing with old friends 7 (23.3) 6 (19.4) 3 (18.8) 4 (28.6)
Dealing with new friends 7 (23.3) 3 (9.7) 2 (12.5) 1 (7.1)