Table 3.
Case-mix variable domains and definitions included in the Standard Set
| Category and case-mix factor domain | Case-mix factor definition | Data Source | Agreementa |
|---|---|---|---|
| Demographic Factors | |||
| Age | Age at time of delivery | A | 100% |
| Education level | Please indicate the highest level of schooling completed. None; Primary; Secondary; Tertiary (university or equivalent). | PR | 94% |
| Race/ethnicity | Race/ethnicity as defined locally. Varies by country and should be determined by country (not for cross country comparison). | PR | 88% |
| Social Support | SIMSS, How many people do you have near you that you can readily count on for help in time of difficulty such as to watch over children or pets, give rides to the hospital or store, or help when you are sick? | PR | 75% |
| Parity | Have you given birth before? This includes both vaginal births and Cesarean sections (operations to remove your baby from your abdomen). Please do not count miscarriages or births that happened before 20 weeks (5 months) of pregnancy. | PR | 100% |
| Obstetric and Medical History | |||
| Obstetric history | If you have been pregnant before, have you experienced any of the following in previous pregnancies? Please mark all that apply. This is my first pregnancy. A baby born early, more than 3 weeks before his or her due date. Bleeding so much during pregnancy, birth, or after birth that you needed to be given blood. A Cesarean section (operation to remove your baby through your abdomen). Loss of a pregnancy after 20 weeks (5 months) of pregnancy. | PR | 100% |
| Medical history | BEFORE you got pregnant, did a doctor, nurse, or other health worker tell you that you had any of the following health conditions? Tick all that apply: Diabetes; high blood pressure or hypertension; a mental health disorder such as depression, anxiety, bipolar disorder or schizophrenia. | PR | 94% |
| Multiple gestations | Are you pregnant with: One baby, two babies (twins), three or more babies (triplets or higher). | PR | 100% |
| BMI | What was your weight IMMEDIATELY before your pregnancy? (Weight in lbs. or kgs). What is your height? (Height in ft. or meters). | PR | 94% |
| Substance use | Tobacco use, drug use, or alcohol use complicating pregnancy | PR | 94% |
| Congenital anomaly | Diagnosis of a neonate with any of the following within 28 days of birth: Anencephaly, Spina bifida occulta, Meningo (myelo)cele, Hydrocephaly/holoprosencephaly without neural tube defect, Encephalocele, Neuromuscular abnormalities, Transposition of the great artieris, Tetralogy of Fallot, Hypoplastic left heart, Coarctation of the aorta, Complex cardiac malformation, Choanal atresia, Congenital malformation trachea, Lung hypoplasia, Hydro/Chylothorax, Congenital diaphragmatic hernia, Extrophia vesicase, Bilateral renal agenesis, Gastroschizis, Omphalocele, Trisomy 13, Trisomy 18, Trisomy 21, Congenital malignancy | A | 94% |
| Treatment Variables | |||
| Facility Type | Indicate where the birth took place (using local definitions for NICU levels): Birth at home or birth center, birth at a hospital with a level 1 or 2 NICU, birth at a hospital with a level 3 NICU. | A | 94% |
| Route of delivery | Indicate the route of birth: spontaneous vaginal delivery, forceps or vacuum vaginal delivery, delivery by cesarean section. | PR | 82% |
aPercentage agreement among survey respondents to include case-mix factor
For data source: A administrative data, PR patient-reported data