Table 2.
Spontaneous Coronary Artery Dissection–Specific Information Received or Obtained Post-Diagnosis
| n (%) | |
|---|---|
| Information provided by provider at the time of SCAD diagnosisa | |
| Verbal information from medical provider | 265 (72) |
| No information about SCAD | 97 (26) |
| Written information from a SCAD- or heart-focused organization (eg, SCAD Alliance, American Heart Association) | 45 (12) |
| Scientific papers about SCAD | 16 (4) |
| Information about a cardiovascular/heart disease other than SCAD | 9 (3) |
| Recruitment information for SCAD-related research study | 5 (1) |
| Information about SCAD obtained from the internet | 5 (1) |
| Information from other sources not listed | 5 (1) |
| Perceived quality of information received from provider at the time of diagnosis | |
| “Too much/too difficult to understand” | 2 (0.5) |
| “Adequate/easy to understand” | 64 (17) |
| “Insufficient/inadequate” | 299 (82) |
| Most helpful sources of SCAD information obtained post-diagnosis | |
| Internet search | 191 (52) |
| Support/education associations | 97 (26) |
| Academic/professional journal articles | 36 (10) |
| Doctor and/or other health care professionals | 32 (9) |
| Facebook page for SCAD survivors | 7 (2) |
| Other survivors’ word of mouth | 4 (1) |
Abbreviation: SCAD, spontaneous coronary artery dissection.
a
Percentages not cumulative because participants were asked to select all options that applied.