Table 4.
Caregiver Wellbeing Index levels | ||||||
---|---|---|---|---|---|---|
Excellent | Good | Fair | Poor | |||
Primary caregiver reports | Total n | % (n) | % (n) | % (n) | % (n) | |
Feeling unable to continue | 387 | 14.3 (22) | 28 (42) | 38.2 (125) | 50.9 (198) | <.0001 |
Conflict with family | 189 | 3.25 (5) | 17.3 (26) | 18.3 (60) | 25.2 (98) | <.0001 |
Feeling distress, anger, depression | 662 | 20.1 (31) | 53.3 (80) | 73.1 (239) | 80.2 (312) | <.0001 |
Feeling unable to increase emotional support | 647 | 51.3 (79) | 54.7 (82) | 66.1 (216) | 69.4 (270) | .0006 |
Care recipient symptoms | ||||||
Worsening of decision makinga | 444 | 29.8 (46) | 28.7 (43) | 42.8 (140) | 55.2 (215) | <.0001 |
Worsening in communicationa | 254 | 12.9 (20) | 14.7 (22) | 26.6 (87) | 32.1 (125) | <.0001 |
Changes in behavioural symptomsa | 170 | 3.90 (6) | 9.33 (14) | 17.4 (57) | 23.9 (93) | <.0001 |
Mood declinea | 310 | 10.4 (16) | 23.3 (35) | 29.6 (97) | 41.6 (162) | <.0001 |
MAPLe 5 | 265 | 12.3 (19) | 15.3 (23) | 29.6 (97) | 32.4 (126) |
acompared to status of 90 days ago