Table 2.

Demographic information of KUMC ALS clinical patients. Baseline is defined as the time of a patient’s first recorded ALSFRS-R score at KUMC

	KUMC
Number of patients	352
Percent female / Male	43/ 57
Percent Caucasian / Non-Caucasian	89/ 11
Percent limb onset / Bulbar / Other	65/ 27/ 8
Percent using riluzole Yes / No / NA	63/ 35 / 2
Percent survived during follow up	69
Median time from baseline to last record, months (IQR)	7.1 (17.7)
Median age at baseline (IQR)	65.3 (11.2)
Median number of months from onset to baseline (IQR)	19.0 (28.1)
Median baseline FVC percent predicted (IQR)	70.0 (32.5)
Median BMI at baseline (IQR)	26.4 (7.23)
Median number of ALSFRS-R assessments (IQR)	3 (4)
Median baseline ALSFRS-R (SD)	35.5 (10.0)