Table 2.

List of identified themes and breakdown of relative codes

Themes	Codes
Learning a new role with an illness	Afraid of being categorized as “sick”; negative attitude toward the illness; comparing oneself to non-diseased individuals; sense of injustice (why me?)
•As a human being
• Being responsible for the illness and its treatment	Learning from parents; feeling of self-efficacy
• As a patient	Participation in the decision; willingness to be viewed as an adult
Learning a new lifestyle	A need for information on general health matters; not identifying health care professionals as resources for health questions
Learning a new health care service	The change is not perceived in relation to oneself; the change is mostly perceived in relation to the parents; peace of mind regarding the change; the change is grasped after the fact; a modification in the relationship with the health care personnel; more biomedical consultations in the adults’ unit; administrative management is difficult to handle
Maintaining a dual relationship with pediatric and adult care	Trusting the pediatric doctor more for urgent or personal questions; needing time to trust new health care professionals; a sense of security provided by the dual relationship with pediatric and adult services
Having experience sharing with peers	Exchanging tips and tricks to live with the illness; sharing similar experiences; a common vocabulary