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. 2018 Dec 17;4:186. doi: 10.1186/s40814-018-0378-1

Table 4.

Feedback from user groups (Leicester)

Groups No. of users Conducted by: Emergent themes
User group 1 n = 11 n = 4 o Transport: a free bus pass or taxi provided enable/motivate people to attend appointments/sessions, particularly if people are feeling unwell or down.
o Duration of a session should not exceed 2 h. Long sessions could cause anxiety, be difficult for people on injections, put them off coming
o Sessions should start in the afternoon, around 1:00pm or 2:00pm.
o Regular breaks are important for concentration
o Would be OK bringing a friend or support worker with them to a session, but not family member.
o Barriers to attending sessions: tiredness, depression, feeling isolated or down, bad weather, football match, or something interesting on TV.
o Availability of free food/drinks a big motivator. People with schizophrenia do not cook for themselves when they feel down.
o Entertainment at the venue is a good motivator, e.g. to play pool.
o Call reminders as people forget about appointments. Text or phone OK.
o Feedback after the sessions, but a phone call, not a form to fill in.
o Many comments on resources, e.g., people are not aware of the amount of sugar in fizzy drinks, which are easy to take especially when people are unwell.
o Beer is harder to change—people with schizophrenia can be addicted to alcohol.
o Health messages given should depend on the individual
User group 2 1× developer; 1× independent interviewer 2× developers; 1× independent interviewer o Methods suggested to avoid weight gain: eat food low in calories; have someone to cook for them; carry a bottle of water with them; carry little snacks with them; drink tea at night; use mp3 player to motivate them to walk; have access to recommended information on daily allowances, etc.
o People with schizophrenia have no control over craving.
o Upsetting events can overwhelm and lead to over eating
o Tablets that cause sleepiness can de-motivate to stay physically active.
o Do not like the idea of food diaries—a hassle to complete and would probably forget about it.
o Exercise seen as good motivator to overcome depression—not about losing weight, but about becoming fitter
o Give reward for weight loss, e.g., going away on holiday
o It can be hard to take in information and make a change in diet
o People did not like the word ‘group’—people with schizophrenia would not attend—replace with ‘drop-in’.
o Sessions need to be in a routine, as change is stressful when you have schizophrenia
o If people are attending a session for more than one reason, e.g., they are coming to a drop in to get support for weight management, there will be a free lunch and drinks, and there it is possible to play pool and other games at the venue—more are likely to attend.