Table 1:
Characteristics of children and parents and outcomes of interest (N=213)
| Demographics | Mean (SD)/Range | Median (IQR) |
|---|---|---|
| Child age at diagnosis (years) | 6.6 (4.5)/1-18 | 5.0 (5.5) |
| Child age at evaluation (years) | 14.3 (4.8)/8-23 | 13.2 (7.1) |
| Maternal education (years) | 13.7 (2.6)/4-20 | 13.0 (4.0) |
| Child’s sex | N (percentage) | |
| Male | 109 (51.2%) | |
| Female | 104 (48.8%) | |
| Parent’s sex | ||
| Male | 40 (18.8%) | |
| Female | 173 (81.2%) | |
| Child’s race/ethnicity | N (percentage) | |
| White, non-Hispanic | 157 (73.7%) | |
| Black, non-Hispanic | 27 (12.7%) | |
| Hispanic | 17 (8.0%) | |
| Other | 12 (5.6%) | |
| Treatment Factors | Mean (SD) | Median (IQR) |
| Time since diagnosis (years) | 7.7 (1.7) | 7.5 (2.7) |
| Treatment intensity | N (percentage) | |
| Standard/High risk | 91 (42.7%) | |
| Low risk | 122 (57.3%) | |
| Survey Outcomes | Mean (SD) | Median (IQR) |
| Family cohesiona | 2.4 (1.5) | 2.0 (2.0) |
| Parental distressa, b | 42.6 (9.6) | 39.0 (11.0) |
| Parental protective behaviora, b | 23.9 (7.9) | 24.0 (9.5) |
| Child overall symptom burden c | 84.5 (14.8) | 83.5 (21.0) |
| Child HRQOLc | 80.6 (15.9) | 84.5 (21.0) |
| Family straina | 44.6 (13.8) | 43.0 (22.0) |
IQR: Interquartile range
a
Higher scores indicate worse outcomes
b
Based on clinically meaningful cut-points, 16% of parents of childhood cancer survivors had global distress, and 22% of parents engaged in overprotective behaviors