Table 1. Clinical summary of patients.
| Number | Percent | |
|---|---|---|
| Gender | ||
| Male | 212 | 58.6% |
| Female | 150 | 41.4% |
| CDH classification | ||
| Isolated | 208 | 57.5% |
| Complex | 149 | 41.2% |
| Unknown | 5 | 1.4% |
| Lesion side | ||
| Left | 270 | 74.6% |
| Right | 56 | 15.5% |
| Eventration/Morgagni/Agenesis | 11 | 3.0% |
| Unknown | 25 | 6.9% |
| CDH type | ||
| Bochdaleck | 294 | 81.2% |
| Other# | 22 | 6.1% |
| Unknown | 46 | 12.7% |
| DHREAMS cohort (n = 283): Time of recruitment | ||
| Neonatal | 229 | 80.9% |
| Fetal | 9 | 3.2% |
| Child | 45 | 15.9% |
| Discharge vital status (n = 283) | ||
| Survived | 241 | 85.2% |
| Deceased | 42 | 14.8% |
| Development assessment¶ (n = 283) | ||
| At 2 years follow-up | 152 | 53.7% |
| At 5 years follow-up | 70 | 24.7% |
| No assessment at either 2 or 5 years | 128 | 45.2% |
| Additional anomalies in complex cases (n = 149) | ||
| Cardiovascular | 66 | 44.3% |
| Neurodevelopmental§ | 37 | 24.8% |
| Skeletal | 26 | 17.4% |
| Genitourinary | 14 | 9.4% |
| Gastrointestinal | 13 | 8.7% |
¶ Development assessment at 2 years follow-up include Vineland Adaptive Behavior Assessment (Vineland-II) and/or Bayley Scales of Toddler Development (Bayley-III); tests at 5 years follow-up include Vineland-II and/or Wechsler Preschool and Primary Scale of Intelligence (WPPSI).
§Neurodevelopmental conditions include congenital abnormalities in central nerves system, and developmental delay or neuropsychiatric disorders based on the follow-up developmental evaluations.