TABLE 4.
Adult | Adolescent# | Paediatric# | Total | |
Impact on patients’ lives % | ||||
Disruption of activities of daily living | 89.0 | 84.0 | 67.0 | 88.0 |
Disruption of physical activities | 84.0 | 90.0 | 89.0 | 84.0 |
Disruption of sleep | 97.0 | |||
Negative impact on self-esteem | 53.0 | 45.0 | 32.0 | 51.0 |
Negative impact on professional life | 58.0 | 36.0¶ | 55.0 | |
Wellbeing assessment % | ||||
Felt cheerful and in good spirits | 4.0 | 3.0¶ | 4.0 | |
Felt calm and relaxed | 5.0 | 3.0¶ | 5.0 | |
Felt active and vigorous | 11.0 | 2.0¶ | 10.0 | |
Woke up feeling fresh and relaxed | 15.0 | 9.0¶ | 14.0 | |
Daily life has been filled with things that interest me | 6.0 | 5.0¶ | 6.0 |
#: data for adolescent and paediatric patients were captured through their caregivers. ¶: Data are reported for the caregivers of the adolescent and paediatric patients.