TABLE 1.
Enrollment Characteristics of Children in a Complex Care Program Assisted by Medical Devices, N = 98
| Characteristic | Quantity |
|---|---|
| No. devices, median (IQR) | 2 (1–2) |
| Age, y, mean (SD) | 6.5 (5.0) |
| Gestational age at birth, wk, mean (SD) | 36.8 (4.2) |
| Girls, n (%) | 48 (49.0) |
| Race and/or ethnicity, n (%) | |
| White, non-Hispanic | 82 (83.7) |
| Black or African American, non-Hispanic | 5 (5.1) |
| Hispanic, any race | 5 (5.1) |
| Other | 6 (6.1) |
| Primary language of guardian, n (%) | |
| English | 94 (95.9) |
| Spanish | 3 (3.1) |
| Parent and/or household status, n (%) | |
| Two-parent | 74 (75.5) |
| Single-parent | 18 (18.4) |
| Foster or guardian | 6 (6.1) |
| Spends time in >1 household, n (%) | 9 (9.2) |
| No. siblings, mean (SD) | 1.9 (2.0) |
| Passive smoke exposure, n (%) | 19 (19.4) |
| Primary payer, n (%) | |
| Public | 49 (50.0) |
| Commercial | 49 (50.0) |
| Distance to hospital, min, mean (SD) | 63.5 (39.3) |
| Complex care program enrollment criteria, past y, mean (SD) | |
| Subspecialists | 7.1 (2.5) |
| Ambulatory clinic visits | 12.6 (8.8) |
| Hospitalizations | 1.7 (1.9) |
| Hospital days | 24.2 (39.8) |
| Complex chronic conditions, mean (SD) | 4.9 (1.7) |
| ED visits, past y, mean (SD) | 2.1 (2.7) |
| Scheduled medications, mean (SD) | 9.8 (6.4) |
| Any care received outside institution, n (%) | 67 (68.4) |
| Additional resources and therapies, n (%) | |
| Occupational therapy | 65 (66.3) |
| Speech therapy | 62 (63.3) |
| Physical therapy | 72 (73.5) |
| Personal care and/or respite worker | 34 (34.7) |
| Early intervention or individualized education plan | 68 (69.4) |