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. 2019 Jan;9(1):6–15. doi: 10.1542/hpeds.2018-0103

TABLE 2.

Device Use Combinations on Enrollment to a PCCP

	Patients With Device	Duration of Use	Simultaneous Device Use, n (%)
	n (%)	Median (IQR), mo	BiPAP and/or CPAP	Home Oxygen	Tracheostomy With Ventilator	Tracheostomy Without Ventilator	Gastrojejunostomy or Jejunostomy Tube	Gastrostomy Tube	Ileostomy and/or Colostomy	Nasogastric or Nasojejunal Tube	Baclofen Pump	Central Venous Catheter	Vagal Nerve Stimulator	Ventricular Shunt
BiPAP and/or CPAP	10 (10.2)	12.0 (4.8–51.8)	—	4 (40)^d	0 (0)^a	1 (9)^b	2 (20)^b	7 (70)^d	0 (0)^a	0 (0)^a	0 (0)^a	0 (0)^a	0 (0)^a	0 (0)^a
Home oxygen	23 (23.5)	8.2 (2.2–15.3)	4 (17)^b	—	0 (0)^a	4 (17)^b	3 (13)^b	17 (74)^d	1 (4)^b	3 (13)^b	1 (4)^b	1 (4)^b	0 (0)^a	0 (0)^a
Tracheostomy with ventilator	7 (7.1)	20.0 (6.7–48.2)	0 (0)^a	4 (57)^d	—	0 (0)^a	2 (33)^c	6 (86)^e	1 (14)^b	0 (0)^a	0 (0)^a	1 (14)^b	0 (0)^a	1 (14)^b
Tracheostomy without ventilator	7 (7.1)	55.3 (16.8–127.4)	0 (0)^a	0 (0)^a	0 (0)^a	—	1 (14)^b	6 (86)^e	0 (0)^a	0 (0)^a	1 (14)^b	2 (29)^c	0 (0)^a	0 (0)^a
Gastrojejunostomy or jejunostomy tube	12 (12.2)	38.2 (9.3–71.8)	2 (17)^b	3 (25)^b	1 (8)^b	1 (8)^b	—	0 (0)^a	1 (8)^b	0 (0)^a	1 (8)^b	3 (25)^b	0 (0)^a	2 (17)^b
Gastrostomy tube	77 (78.6)	33.3 (6.8–63.4)	7 (9)^b	17 (23)^b	6 (8)^b	6 (8)^b	0 (0)^a	—	2 (3)^b	0 (0)^a	9 (12)^b	2 (3)^b	2 (3)^b	7 (9)^b
Ileostomy and/or colostomy	3 (3.1)	16.2 (13.6–28.2)	0 (0)^a	1 (33)^c	1 (33)^b	0 (0)^b	1 (33)^c	2 (67)^d	—	0 (0)^a	0 (0)^a	1 (33)^c	0 (0)^a	0 (0)^a
Nasogastric or nasojejunal tube	4 (4.1)	3.0 (0.8–12.1)	0 (0)^a	3 (75)^d	0 (0)^a	0 (0)^a	0 (0)^a	0 (0)^a	0 (0)^a	—	0 (0)^a	0 (0)^a	0 (0)^a	0 (0)^a
Baclofen pump	11 (11.2)	54.7 (15.9–63.7)	1 (10)^b	1 (9)^b	0 (0)^a	1 (9)^b	1 (9)^b	9 (82)^e	0 (0)^a	0 (0)^a	—	0 (0)^a	0 (0)^a	1 (9)^b
Central venous catheter	6 (6.1)	29.9 (9.9–48.9)	0 (0)^a	1 (17)^b	1 (17)^b	2 (33)^c	3 (50)^c	2 (33)^c	1 (17)^b	0 (0)^a	0 (0)^b	—	0 (0)^a	0 (0)^a
Vagal nerve stimulator	2 (2.0)	12.7 (5.0–20.4)	0 (0)^a	0 (0)^a	0 (0)^a	0 (0)^a	0 (0)^a	2 (100)^e	0 (0)^a	0 (0)^a	0 (0)^a	0 (0)^a	—	0 (0)^a
Ventricular shunt	11 (11.2)	78.0 (25.2–120.1)	0 (0)^a	0 (0)^a	1 (9)^b	0 (0)^a	2 (18)^b	7 (64)^d	0 (0)^a	0 (0)^a	1 (9)^b	0 (0)^a	0 (0)^a	—

—, not applicable.

^a

0%

^b

>0%–25%

^c

26%–50%

^d

51%–75%

^e

>75%