Table 1.
Chronology of BRIGHTLIGHT patient involvement
| Year | Activity |
|---|---|
| 2008 | Core Consumer Group (CCG) present at Find Your Sense of Tumour (FYSOT) |
| 2009 | Essence of Care study begins |
| CCG conduct peer-to-peer interviews | |
| CCG conduct data analysis | |
| CCG member assists with facilitating professional workshop | |
| 2010 | CCG conduct second consultation at FYSOT |
| CCG present at Plenary Session National Cancer Research Institute (NCRI) Conference | |
| CCG present at INVOLVE conference | |
| 2011 | CCG present Essence of Care results at FYSOT |
| Workshop to present Essence of Care results back to CCG and study participants | |
| Workshop to create study name: BRIGHTLIGHT | |
| 2012 | BRIGHTLIGHT logo launched |
| Focus groups to develop the BRIGHTLIGHT survey Young Advisory Panel (YAP) workshop to develop the website | |
| 2013 | YAP workshop on access to research |
| YAP instigate launch of Twitter | |
| 2014 | YAP member interviewed by BBC5 Live Radio |
| YAP members create video of information sheets | |
| YAP workshop on study retention | |
| BRIGHTLIGHT public and patient involvement and engagement (PPIE) featured in the NCRI newsletter | |
| YAP present at FYSOT | |
| 2015 | BRIGHTLIGHT featured in INVOLVE newsletter |
| YAP workshops - generating hypotheses, and body image and sexuality | |
| YAP launch new website | |
| 2016 | YAP workshop on online information needs |
| YAP member presents at NCRI Conference Schools Session | |
| 2017 | Begin production of dissemination play, There is a Light |
| Opening night of There is a Light at the S!CK festival | |
| YAP co-chair the joint TYAC-BRIGHTLIGHT conference | |
| YAP workshop on sexuality |
CCG Core Consumer Group, FYSOT Find Your Sense of Tumour, NCIN National Cancer Intelligence Network, NCRI National Cancer Research Institute, PPIE public and patient involvement and engagement, RCN Royal College of Nursing, YAP Young Advisory Panel