Table 1.
Patients | Caregivers | |||||
---|---|---|---|---|---|---|
Respondents (n=691) |
Non- Respondents (n=1466) |
p value | Respondents (n=333) |
Non- Respondents (n=1824) |
p value | |
Patient age at survey | ||||||
▓< 60 years | 302 (44) | 934 (64) | <0.0001 | 176 (53) | 1326 (73) | <0.0001 |
▓≥ 60 years | 389 (56) | 532 (36) | 157 (47) | 498 (27) | ||
Patient sex | ||||||
▓Female | 322 (47) | 642 (44) | 0.22 | 146 (44) | 818 (45) | 0.74 |
▓Male | 369 (53) | 824 (56) | 187 (56) | 1006 (55) | ||
Patient age at HCT | ||||||
▓< 18 years | 30 (4) | 217 (15) | <0.0001 | 10 (3) | 237 (13) | <0.0001 |
▓≥ 18 years | 661 (96) | 1249 (85) | 323 (97) | 1587 (87) | ||
Time since HCT1 | ||||||
▓≤ 5 years | 203 (29) | 407 (28) | 0.44 | 171 (51) | 801 (44) | 0.01 |
▓> 5 years | 488 (71) | 1059 (72) | 162 (49) | 1023 (56) | ||
Type of transplant | ||||||
▓Auto | 230 (33) | 463 (32) | 0.19 | 118 (35) | 575 (32) | 0.009 |
▓Related allo | 253 (37) | 596 (41) | 106 (32) | 743 (41) | ||
▓Unrelated allo | 208 (30) | 407 (28) | 109 (33) | 506 (28) | ||
Disease | ||||||
▓Acute myeloid leukemia | 133 (19) | 273 (19) | 0.0001 | 66 (20) | 340 (19) | <0.0001 |
▓Chronic myeloid leukemia | 112 (16) | 254 (17) | 35 (11) | 331 (18) | ||
▓Myelodysplastic syndrome | 93 (13) | 127 (9) | 47 (14) | 173 (9) | ||
▓Multiple myeloma | 109 (16) | 173 (12) | 67 (20) | 215 (12) | ||
▓Lymphoma | 132 (19) | 315 (21) | 72 (22) | 375 (21) | ||
▓All others | 112 (16) | 324 (22) | 46 (14) | 390 (21) | ||
Graft source | ||||||
▓Bone marrow | 220 (32) | 597 (41) | <0.0001 | 72 (22) | 745 (41) | <0.0001 |
▓Peripheral blood stem cells | 457 (66) | 827 (56) | 252 (76) | 1032 (57) | ||
▓Cord blood | 14 (2) | 42 (3) | 9 (3) | 47 (3) | ||
Conditioning | ||||||
▓Myeloablative | 594 (86) | 1332 (91) | 0.0006 | 270 (81) | 1656 (91) | <0.0001 |
▓Non-myeloablative | 97 (14) | 134 (9) | 63 (19) | 168 (9) | ||
Acute GVHD (allo only) | ||||||
▓0–1 | 174 (38) | 360 (37) | 0.17 | 75 (35) | 459 (37) | 0.40 |
▓2 | 244 (53) | 509 (52) | 120 (56) | 633 (52) | ||
▓3 | 39 (9) | 117 (12) | 19 (9) | 137 (11) | ||
Chronic GVHD1(allo only) | ||||||
▓Never | 169 (37) | 433 (43) | 0.0008 | 67 (31) | 535 (43) | 0.0002 |
▓≤ 5 years ago | 92 (20) | 128 (13) | 76 (35) | 289 (23) | ||
▓> 5 years ago | 200 (43) | 442 (44) | 72 (33) | 425 (34) | ||
Relapse1 | ||||||
▓Never | 641 (93) | 1323 (90) | 0.14 | 309 (93) | 1655 (91) | 0.34 |
▓≤ 5 years ago | 16 (2) | 52(4) | 14 (4) | 82(5) | ||
▓> 5 years ago | 34 (5) | 91(6) | 10(3) | 87(5) | ||
Inpatient days | ||||||
▓≤ 35 days | 523(78) | 952(67) | <0.0001 | 274(84) | 1201 (68) | <0.0001 |
▓> 35 days | 151 (22) | 474(33) | 52 (16) | 573(32) |
Based on date returned for respondents, and date sent for non-respondents