Table 1.

Sample questions from focus group discussions with clinicians.

Counseling patients with FH Suppose you have a patient with suspected FH: In your opinion, what would have made explaining the genetic aspects of the disease easier? Would a patient decision aid (a document designed to be used with your patient that attempts to take patient preferences into account when deciding on genetic testing for FH mutations) have helped you?

Creating a Patient Decision Aid What is your opinion of shared decision-making? Shared decision-making with the use of a patient decision aid? What has been your experience with using patient decision aids? What do you like about them? What do you dislike about them? How have they been most helpful for you? For the patient? What was your experience like when you were counseling patients for genetic testing of the disease? Did you feel you gave a sufficient explanation of the available options? Were you comfortable with giving advice to the patient regarding the various options?